The support needs of parent caregivers of children with a life-limiting illness and approaches used to meet their needs: a scoping review

FJ Gill, Z Hashem, R Stegmann… - Palliative …, 2021 - journals.sagepub.com
Background: Provision of paediatric palliative care is complex and optimally covers meeting
the individual needs of a heterogenous population of children and their parent caregivers …

A scoping review of the experiences and well-being of siblings of children with chronic kidney disease: Implications for practice and research

C Piotrowski, A Giesbrecht, A Goldberg, D Judd… - Pediatric …, 2022 - Springer
Background Children with chronic kidney disease (CKD) and their families deal with
challenging circumstances. While numerous studies have shown that both patients and …

Scoping review of the dietary intake of children with chronic kidney disease

E Melhuish, R Lindeback, K Lambert - Pediatric Nephrology, 2022 - Springer
Background Adequate nutrition is integral to optimal health outcomes for children with
chronic kidney disease. However, no studies to date have summarised the existing …

Siblings of children with chronic kidney disease: A qualitative study of everyday life experiences

H Agerskov, HC Thiesson, BD Pedersen - Journal of renal care, 2021 - Wiley Online Library
Background Chronic kidney disease in children has an impact on all family members.
Healthy siblings, in particular, may experience negative psychological and emotional …

Adding life to their years: the current state of pediatric palliative care in CKD

TR House, A Wightman - Kidney360, 2021 - journals.lww.com
Despite continued advances in medical treatment, pediatric CKD remains an unremitting,
burdensome condition characterized by decreased quality of life and earlier death. These …

Palliative care training in pediatric nephrology fellowship: a cross-sectional survey

TR House, A Wightman, J Smith, M Schwarze… - Kidney360, 2023 - journals.lww.com
Background Children with CKD and their families encounter significant burdens. Integrating
primary palliative care (PC), holistic care provided by nephrologists focused on enhancing …

Pediatric renal transplantation: single center experience

S Mir, H Erdoğan, E Serdaroğlu… - Pediatric …, 2005 - Wiley Online Library
Although renal transplantation (RTx) is actually the first choice of treatment for children with
end‐stage renal disease, the number of transplanted children remains low in comparison …

Gestão do cuidado à criança/adolescente com doença crônica:(des) articulação da rede e fragmentação das ações

BGA Silva, AN Machado, VM Nóbrega… - Rev. enferm …, 2020 - pesquisa.bvsalud.org
Objetivo: analisar a gestão do cuidado à criança/adolescente com doença crônica na rede
de atenção à saúde, tendo como alicerce as experiências de famílias na busca pelo …

Management dilemmas in pediatric nephrology: moving from friction to flourishing in “challenging” cases

C Brunson, TR House, D Noone, A Wightman - Pediatric Nephrology, 2024 - Springer
Management dilemmas in pediatric nephrology: moving from friction to flourishing in “challenging”
cases | Pediatric Nephrology Skip to main content Advertisement SpringerLink Account Menu …

Parenting a child with a kidney transplant—A study of everyday life experiences

H Agerskov, HC Thiesson… - Journal of Renal Care, 2023 - Wiley Online Library
Background Kidney transplantation in children shows excellent long‐term outcomes.
However, parents feel responsible for ensuring that their child adheres to complex medical …