Background A compelling ethical rationale supports patient engagement in healthcare
research. It is also assumed that patient engagement will lead to research findings that are …

Background There is growing attention towards increasing patient and service user
engagement (PSUE) in biomedical and health services research. Existing variations in …

Background Patient and public involvement (PPI) is a prerequisite for many funding bodies
and NHS research ethics approval. PPI in research is defined as research carried out with or …

There has been a substantial increase in research activity on autism during the past decade.
Research into effective ways of responding to the immediate needs of autistic people is …

Plain English summary There have been many attempts to improve how healthcare services
are developed and delivered. Despite this, we know that there are many gaps and …

Plain English summary In the UK, more patients go to primary care than other parts of the
health service. Therefore it is important for research into primary care to include the insights …

Background There has been increasing evidence and debate on palliative care research
priorities and the international research agenda. To date, however, there is a lack of …

OBJECTIVE: To review published examples of public involvement in research design, to
synthesise the contributions made by members of the public, as well as the identified …

Background Much has been written about public involvement (PI) in health and social care
research, but underpinning values are rarely made explicit despite the potential for these to …

Objectives To characterise the literature on public involvement in health research published
between 1995 and 2009. Methods Papers were identified from three systematic reviews …