Adult care in cystic fibrosis

JS Elborn - Seminars in respiratory and critical care medicine, 2019 - thieme-connect.com
Cystic fibrosis (CF) is now more common in adults than children in countries with well-
developed health care systems. The number of adults continues to increase and will further …

Self-management intervention to reduce pulmonary exacerbations by supporting treatment adherence in adults with cystic fibrosis: a randomised controlled trial

MJ Wildman, A O'Cathain, C Maguire, MA Arden… - Thorax, 2022 - thorax.bmj.com
Introduction Recurrent pulmonary exacerbations lead to progressive lung damage in cystic
fibrosis (CF). Inhaled medications (mucoactive agents and antibiotics) help prevent …

An intervention to support adherence to inhaled medication in adults with cystic fibrosis: the ACtiF research programme including RCT

MJ Wildman, A O'Cathain, D Hind… - Programme Grants for …, 2021 - shura.shu.ac.uk
Background People with cystic fibrosis frequently have low levels of adherence to inhaled
medications. Objectives The objectives were to develop and evaluate an intervention for …

Development of an intervention to increase adherence to nebuliser treatment in adults with cystic fibrosis: CFHealthHub

MA Arden, M Hutchings, P Whelan, SJ Drabble… - Pilot and Feasibility …, 2021 - Springer
Background Cystic fibrosis (CF) is a life-limiting genetic condition in which daily therapies to
maintain lung health are critical, yet treatment adherence is low. Previous interventions to …

A multi-centre, randomized, controlled trial on coaching and telemonitoring in patients with cystic fibrosis: conneCT CF

S Thee, M Stahl, R Fischer, S Sutharsan… - BMC Pulmonary …, 2021 - Springer
Background The extend of lung disease remains the most important prognostic factor for
survival in patients with cystic fibrosis (CF), and lack of adherence is the main reason for …

Understanding patient activation and adherence to nebuliser treatment in adults with cystic fibrosis: responses to the UK version of PAM-13 and a think aloud study

J Gao, M Arden, ZH Hoo, M Wildman - BMC Health Services Research, 2019 - Springer
Background Patient activation refers to patients' knowledge, skills, and confidence in self-
managing health conditions. In large cross-sectional studies, individuals with higher patient …

[HTML][HTML] Mechanisms of action of a web-based intervention with health professional support to increase adherence to nebulizer treatments in adults with cystic fibrosis …

SJ Drabble, A O'Cathain, AJ Scott, MA Arden… - Journal of Medical …, 2020 - jmir.org
Background Adherence to nebulizer treatments in adults with cystic fibrosis (CF) is often low.
A new complex intervention to help adults with CF increase their adherence to nebulizer …

When is forgetting not forgetting? A discursive analysis of differences in forgetting talk between adults with cystic fibrosis with different levels of adherence to nebulizer …

SJ Drabble, A O'Cathain, MA Arden… - Qualitative health …, 2019 - journals.sagepub.com
Forgetting is often cited as a reason why people struggle to adhere to treatments for chronic
conditions. Interventions have tried to improve forgetting behavior using reminders. We used …

Feasibility study for supporting medication adherence for adults with cystic fibrosis: mixed-methods process evaluation

D Hind, SJ Drabble, MA Arden, L Mandefield… - BMJ open, 2020 - bmjopen.bmj.com
Objectives To undertake a process evaluation of an adherence support intervention for
people with cystic fibrosis (PWCF), to assess its feasibility and acceptability. Setting Two UK …

[HTML][HTML] Telehealth after the pandemic: Will the inverse care law apply?(Commentary)

RJ Calthorpe, AR Smyth - Journal of Cystic Fibrosis, 2021 - Elsevier
The COVID-19 pandemic has accelerated the use of telehealth within the cystic fibrosis (CF)
community to deliver CF care. The article by Solomon and colleagues exploring the patient …