Adult care in cystic fibrosis
JS Elborn - Seminars in respiratory and critical care medicine, 2019 - thieme-connect.com
Cystic fibrosis (CF) is now more common in adults than children in countries with well-
developed health care systems. The number of adults continues to increase and will further …
developed health care systems. The number of adults continues to increase and will further …
Self-management intervention to reduce pulmonary exacerbations by supporting treatment adherence in adults with cystic fibrosis: a randomised controlled trial
MJ Wildman, A O'Cathain, C Maguire, MA Arden… - Thorax, 2022 - thorax.bmj.com
Introduction Recurrent pulmonary exacerbations lead to progressive lung damage in cystic
fibrosis (CF). Inhaled medications (mucoactive agents and antibiotics) help prevent …
fibrosis (CF). Inhaled medications (mucoactive agents and antibiotics) help prevent …
An intervention to support adherence to inhaled medication in adults with cystic fibrosis: the ACtiF research programme including RCT
MJ Wildman, A O'Cathain, D Hind… - Programme Grants for …, 2021 - shura.shu.ac.uk
Background People with cystic fibrosis frequently have low levels of adherence to inhaled
medications. Objectives The objectives were to develop and evaluate an intervention for …
medications. Objectives The objectives were to develop and evaluate an intervention for …
Development of an intervention to increase adherence to nebuliser treatment in adults with cystic fibrosis: CFHealthHub
MA Arden, M Hutchings, P Whelan, SJ Drabble… - Pilot and Feasibility …, 2021 - Springer
Background Cystic fibrosis (CF) is a life-limiting genetic condition in which daily therapies to
maintain lung health are critical, yet treatment adherence is low. Previous interventions to …
maintain lung health are critical, yet treatment adherence is low. Previous interventions to …
A multi-centre, randomized, controlled trial on coaching and telemonitoring in patients with cystic fibrosis: conneCT CF
Background The extend of lung disease remains the most important prognostic factor for
survival in patients with cystic fibrosis (CF), and lack of adherence is the main reason for …
survival in patients with cystic fibrosis (CF), and lack of adherence is the main reason for …
Understanding patient activation and adherence to nebuliser treatment in adults with cystic fibrosis: responses to the UK version of PAM-13 and a think aloud study
Background Patient activation refers to patients' knowledge, skills, and confidence in self-
managing health conditions. In large cross-sectional studies, individuals with higher patient …
managing health conditions. In large cross-sectional studies, individuals with higher patient …
[HTML][HTML] Mechanisms of action of a web-based intervention with health professional support to increase adherence to nebulizer treatments in adults with cystic fibrosis …
Background Adherence to nebulizer treatments in adults with cystic fibrosis (CF) is often low.
A new complex intervention to help adults with CF increase their adherence to nebulizer …
A new complex intervention to help adults with CF increase their adherence to nebulizer …
When is forgetting not forgetting? A discursive analysis of differences in forgetting talk between adults with cystic fibrosis with different levels of adherence to nebulizer …
SJ Drabble, A O'Cathain, MA Arden… - Qualitative health …, 2019 - journals.sagepub.com
Forgetting is often cited as a reason why people struggle to adhere to treatments for chronic
conditions. Interventions have tried to improve forgetting behavior using reminders. We used …
conditions. Interventions have tried to improve forgetting behavior using reminders. We used …
Feasibility study for supporting medication adherence for adults with cystic fibrosis: mixed-methods process evaluation
Objectives To undertake a process evaluation of an adherence support intervention for
people with cystic fibrosis (PWCF), to assess its feasibility and acceptability. Setting Two UK …
people with cystic fibrosis (PWCF), to assess its feasibility and acceptability. Setting Two UK …
[HTML][HTML] Telehealth after the pandemic: Will the inverse care law apply?(Commentary)
RJ Calthorpe, AR Smyth - Journal of Cystic Fibrosis, 2021 - Elsevier
The COVID-19 pandemic has accelerated the use of telehealth within the cystic fibrosis (CF)
community to deliver CF care. The article by Solomon and colleagues exploring the patient …
community to deliver CF care. The article by Solomon and colleagues exploring the patient …