A systematic review of quality of life in parents of children with epilepsy

K Puka, TP Tavares, KK Anderson, MA Ferro… - Epilepsy & Behavior, 2018 - Elsevier
Objectives This systematic review aimed to 1) describe the quality of life (QOL) of parents of
children with childhood-onset epilepsy (CWE), 2) identify factors associated with parental …

Parents'/caregivers' fears and concerns about their child's epilepsy: A scoping review

B Carter, G Cook, L Bray, A Collingwood, H Saron… - Plos one, 2022 - journals.plos.org
Background Childhood epilepsy is a serious and common neurological condition and can
have life-long consequences and its impact can pervade all aspects of family life. Whilst the …

[图书][B] Developmental neuropsychology: A clinical approach

V Anderson, E Northam, J Wrennall - 2018 - taylorfrancis.com
This fully updated edition of Developmental Neuropsychology: A Clinical Approach
addresses key issues in child neuropsychology with a unique emphasis on evidence …

Mental health outcomes among parents of children with a chronic disease during the COVID-19 pandemic: the role of parental burn-out

A Wauters, T Vervoort, K Dhondt… - Journal of pediatric …, 2022 - academic.oup.com
Objective The COVID-19 pandemic and associated quarantine measures highly impacted
parental psychological well-being. Parents of children with chronic diseases might be …

Symptoms of depression, anxiety, and stress in parents of young children with epilepsy: a case controlled population-based study

C Reilly, P Atkinson, A Memon, C Jones, L Dabydeen… - Epilepsy & Behavior, 2018 - Elsevier
The objective was to provide population-based data on depression, anxiety, and stress in
parents of young children with epilepsy and to compare findings with those of parents of …

Multimodal nocturnal seizure detection in children with epilepsy: a prospective, multicenter, long‐term, in‐home trial

A van Westrhenen, RHC Lazeron, JP van Dijk… - …, 2023 - Wiley Online Library
Objective There is a pressing need for reliable automated seizure detection in epilepsy care.
Performance evidence on ambulatory non‐electroencephalography‐based seizure …

Life impact of caregiving for severe childhood epilepsy: results of expert panels and caregiver focus groups

MP Jensen, KS Liljenquist, F Bocell, AR Gammaitoni… - Epilepsy & Behavior, 2017 - Elsevier
Severe epilepsy in children and young adults can significantly affect the lives of their
caregivers. However, the lack of a reliable and valid measure of caregiver impact has limited …

Siblings of young people with chronic illness: caring responsibilities and psychosocial functioning

L Kelada, CE Wakefield, D Drew… - Journal of Child …, 2022 - journals.sagepub.com
Siblings of young people with chronic illness commonly undertake caring responsibilities for
their affected brother/sister, which may encourage maturation, yet may also be perceived as …

The impact of severe pediatric epilepsy on experienced stress and psychopathology in parents

AV Jakobsen, RS Møller, M Nikanorova, A Elklit - Epilepsy & Behavior, 2020 - Elsevier
Objectives To assess the prevalence of psychopathology and the level of stress in parents of
children with severe epilepsy to gain a better understanding of parental support needs …

Patient-centered design criteria for wearable seizure detection devices

AD Patel, R Moss, SW Rust, J Patterson, R Strouse… - Epilepsy & Behavior, 2016 - Elsevier
Introduction Epilepsy is a common neurological condition. Seizure diary reports and patient-
or caregiver-reported seizure counts are often inaccurate and underestimated. Many …