Parenting a child with chronic illness as they transition into adulthood: a systematic review and thematic synthesis of parents' experiences

G Heath, A Farre, K Shaw - Patient education and counseling, 2017 - Elsevier
Objective To understand how parents view and experience their role as their child with a
long-term physical health condition transitions to adulthood and adult healthcare services …

Improving transition to adult healthcare for young people with cystic fibrosis: a systematic review

I Coyne, AM Sheehan, E Heery… - Journal of Child Health …, 2017 - journals.sagepub.com
As survival increases worldwide, large numbers of young people will need to transition from
child to adult cystic fibrosis (CF) services. Little is known about the best method for …

Longevity of patients with cystic fibrosis in 2000 to 2010 and beyond: survival analysis of the Cystic Fibrosis Foundation patient registry

T MacKenzie, AH Gifford, KA Sabadosa… - Annals of internal …, 2014 - acpjournals.org
Background: Advances in treatments for cystic fibrosis (CF) continue to extend survival. An
updated estimate of survival is needed for better prognostication and to anticipate evolving …

Motivating adherence among adolescents with cystic fibrosis: youth and parent perspectives

GS Sawicki, KS Heller, N Demars… - Pediatric …, 2015 - Wiley Online Library
As advances in the care of individuals with cystic fibrosis (CF) have resulted in improved
survival, therapeutic regimens for treatment of CF have become increasingly complex. This …

Transition to adult care: systematic assessment of adolescents with chronic illnesses and their medical teams

JS Huang, M Gottschalk, M Pian, L Dillon… - The Journal of …, 2011 - Elsevier
OBJECTIVE: To examine the process of transition from pediatric to adult health care services
from the perspectives of young adults with chronic disease and both pediatric and adult …

Socioeconomic status and health outcomes: cystic fibrosis as a model

GR Oates, MS Schechter - Expert review of respiratory medicine, 2016 - Taylor & Francis
ABSTRACT Introduction: Socioeconomic status (SES), which indicates one's access to
financial, educational, and social resources, is a powerful determinant of health outcomes in …

An assessment of the experiences and needs of adolescents with chronic conditions in transitional care: a qualitative study to develop a patient education programme

F Bomba, C Herrmann‐Garitz, J Schmidt… - Health & Social Care …, 2017 - Wiley Online Library
The transition of adolescents with chronic conditions is a challenging task. This study aimed
to explore the experiences and needs of adolescents with chronic conditions in the transition …

Parents' role in adolescent depression care: primary care provider perspectives

A Radovic, K Reynolds, HL McCauley, GS Sucato… - The Journal of …, 2015 - Elsevier
Objective To understand how primary care providers (PCPs) perceive barriers to adolescent
depression care to inform strategies to increase treatment engagement. Study design We …

[HTML][HTML] Chronological age when healthcare transition skills are mastered in adolescents/young adults with inflammatory bowel disease

N Stollon, Y Zhong, M Ferris, S Bhansali… - World journal of …, 2017 - ncbi.nlm.nih.gov
AIM To describe the longitudinal course of acquisition of healthcare transition skills among
adolescents and young adults with inflammatory bowel diseases. METHODS We recruited …

The use of the concept of transition in different disciplines within health and social welfare: an integrative literature review

U Lindmark, PH Bülow, J Mårtensson… - Nursing …, 2019 - Wiley Online Library
Aims To continuing the quest of the concept of transition in nursing research and to explore
how the concept of transition is used in occupational therapy, oral health and social work as …