Context Advance care planning (ACP) intends to support person-centered medical decision-
making by eliciting patient preferences. Research has not identified significant associations …

OBJECTIVES: Children with chronic critical illness (CCI) are hypothesized to be a high-risk
patient population with persistent multiple organ dysfunction and functional morbidities …

Children with cancer are frequently hospitalized during diagnosis and treatment. Since the
early 1980s, parents are co-admitted because their presence positively affects children's …

Importance Pediatric advance care planning (ACP), which aims to ensure care is aligned
with family goals and values, is associated with better end-of-life outcomes; however, ACP in …

Children with chronic critical illness (CCI) represent the sickest subgroup of children with
medical complexity. In this article, we applied a proposed definition of pediatric CCI to …

Long-stay patients are an impactful, vulnerable, growing group of inpatients in today's (and
tomorrow's) tertiary hospitals. They can outlast dozens of clinicians that necessarily rotate on …

Objetivo Descrever os casos clinicamente complexos de crianças com necessidades de
saúde especiais em hospitalização contínua e analisar a natureza das demandas de …

To describe healthcare professionals' perceptions of social health inequalities in the context
of pediatric chronic disease and their insights regarding proportionate universalism as a …

Results: The cases included girls and a boy aged three, ten, and 11 years, and
hospitalization time from 4 months to 6 years. They all generated lines of convergence with …

Introduction Chronic critically ill patients (CCI) in pediatric intensive care unit (PICU) are at
risk of negative health outcomes, and account for a considerable amount of ICU resources …