[HTML][HTML] Counting the burden: atopic dermatitis and health-related quality of life

ALI Faraz, V Jui, AY Finlay - Acta dermato-venereologica, 2020 - ncbi.nlm.nih.gov
Atopic dermatitis is the most prevalent chronic inflammatory skin condition globally. The
burden of atopic dermatitis on children and adults is extensive and there is also significant …

The impact of pediatric atopic dermatitis on families: a review

EJ Yang, KM Beck, S Sekhon, T Bhutani… - Pediatric …, 2019 - Wiley Online Library
Background Atopic dermatitis (AD) is an extremely common childhood disease, with
considerable impact on the quality of life of affected children and their families. While …

Quality of life and disease severity in patients with atopic dermatitis

JG Holm, T Agner, ML Clausen… - Journal of the …, 2016 - Wiley Online Library
Background Atopic dermatitis (AD) affects quality of life (QoL) negatively in patients and their
families. We examined the relationship between disease severity and QoL in patients with …

[HTML][HTML] Family reported outcomes, an unmet need in the management of a patient's disease: appraisal of the literature

R Shah, FM Ali, AY Finlay, MS Salek - Health and quality of life outcomes, 2021 - Springer
Background A person's chronic health condition or disability can have a huge impact on the
quality of life (QoL) of the whole family, but this important impact is often ignored. This …

Alopecia areata is associated with impaired health-related quality of life: a survey of affected adults and children and their families

LY Liu, BA King, BG Craiglow - Journal of the American Academy of …, 2018 - jaad.org
To the Editor: Alopecia areata (AA) negatively affects health-related quality of life (HRQoL)
among adults. 1 AA's effect on HRQoL among children and family members of affected …

Measuring the impact of dermatological conditions on family and caregivers: a review of dermatology‐specific instruments

F Sampogna, AY Finlay, SS Salek… - Journal of the …, 2017 - Wiley Online Library
The patient is the centre of a web of relationships, and the impact of his/her disease on
family members and caregivers must be taken into account. The aim of this study was to …

Validation of five patient‐reported outcomes for atopic dermatitis severity in adults

JI Silverberg, DJ Margolis… - British Journal of …, 2020 - academic.oup.com
Background Structured patient‐reported outcomes of atopic dermatitis (AD) severity are not
standardized in clinical practice. Objectives To determine the construct validity, internal …

Quality of life measurement in atopic dermatitis. Position paper of the European Academy of Dermatology and Venereology (EADV) Task Force on quality of life

PV Chernyshov, L Tomas‐Aragones… - Journal of the …, 2017 - Wiley Online Library
There is a need for researchers to have easy reference to the wide spectrum of different
types of quality of life (QoL) instruments that can be used in atopic dermatitis (AD). Previous …

Psychosocial burden of Hidradenitis Suppurativa patients' partners

K Włodarek, A Głowaczewska… - Journal of the …, 2020 - Wiley Online Library
Background Hidradenitis suppurativa is a debilitating disease related to a great
psychosocial burden in affected patients and subsequently also people around them …

Severity of disease and quality of life in parents of children with alopecia areata, totalis, and universalis: a prospective, cross-sectional study

E Putterman, DP Patel, G Andrade, KL Harfmann… - Journal of the American …, 2019 - Elsevier
Background Caregiver-oriented quality of life (QoL) research in alopecia areata is limited.
No study has used a parent-tailored survey to examine the relationship between QoL and …