[HTML][HTML] Internet-based direct-to-consumer genetic testing: a systematic review

L Covolo, S Rubinelli, E Ceretti, U Gelatti - Journal of medical Internet …, 2015 - jmir.org
Background Direct-to-consumer genetic tests (DTC-GT) are easily purchased through the
Internet, independent of a physician referral or approval for testing, allowing the retrieval of …

Public attitudes toward genetic risk testing and its role in healthcare

H Etchegary - Personalized Medicine, 2014 - Taylor & Francis
Developments in genomics continue to increase the number of disorders for which genetic
testing is available, whether in the primary healthcare system, through direct-to-consumer …

Direct-to-consumer genetic testing data privacy: key concerns and recommendations based on consumer perspectives

RM Hendricks-Sturrup, CY Lu - Journal of personalized medicine, 2019 - mdpi.com
Direct-to-consumer genetic testing (DTC-GT) companies are engaging health consumers in
unprecedented ways and leveraging the genetic information they collect to further engage …

Consumer perspectives on access to direct‐to‐consumer genetic testing: role of demographic factors and the testing experience

SE Gollust, SW Gray, DA Carere… - The Milbank …, 2017 - Wiley Online Library
Methods: Data were analyzed from the PGen Study, a longitudinal prospective cohort of
DTC-PGT customers of 23andMe (n= 564) and Pathway Genomics (n= 377; total N= 941) …

Mapping the media genome: an unsupervised machine learning analysis of news framing of direct-to-consumer genetic testing kits

CM Dobmeier, Y Ophir, D Walter… - Mass Communication …, 2023 - Taylor & Francis
Despite their heightening popularity and potential individual and societal implications, little
scientific attention has been given to the news coverage of direct-to-consumer genetic …

“I would rather have it done by a doctor”—laypeople's perceptions of direct-to-consumer genetic testing (DTC GT) and its ethical implications

M Schaper, S Wöhlke, S Schicktanz - Medicine, Health Care and …, 2019 - Springer
Direct-to-consumer genetic testing (DTC GT) has been available for several years now, with
varying degrees of regulation across different countries. Despite a restrictive legal …

[HTML][HTML] Young people's moral attitudes and motivations towards direct-to-consumer genetic testing for inherited risk of Alzheimer disease

G Pavarini, L Hamdi, J Lorimer, I Singh - European Journal of Medical …, 2021 - Elsevier
Abstract Purpose Since the US Food and Drug Administration approved sales of genetic
tests for late-onset Alzheimer's disease (LOAD) risk, a heated debate has arisen over …

Direct to consumer genetic testing in Denmark—public knowledge, use, and attitudes

AM Gerdes, L Nicolaisen, E Husum… - European Journal of …, 2021 - nature.com
Direct to consumer genetic testing (DTC-GT) is offered by commercial companies, but the
use in the general population has only been sparsely investigated. A questionnaire was sent …

[HTML][HTML] Australians' perspectives on support around use of personal genomic testing: findings from the Genioz study

SA Metcalfe, C Hickerton, J Savard… - European Journal of …, 2019 - Elsevier
Personal genomic testing using direct-to-consumer and consumer-directed models, with or
without involvement of healthcare providers, is increasing internationally, including in …

Attitudes towards personal genomics and sharing of genetic data among older Swiss adults: a qualitative study

L Mählmann, S Schee gen. Halfmann… - Public Health …, 2018 - karger.com
Objective: To assess the willingness of older Swiss adults to share genetic data for research
purposes and to investigate factors that might impact their willingness to share data …