Development of medicines for rare diseases and inborn errors of metabolism: Toward novel public–private partnerships

N Rosenberg, NN Stolwijk… - Journal of Inherited …, 2023 - Wiley Online Library
Medicine development for rare diseases, including inborn errors of metabolism (IEMs) is
challenging. Many academic innovations fail to reach the patient, either by stranding in the …

Evaluation of frameworks demonstrating the role of private sector in non-communicable disease management and control: a systematic review and thematic synthesis

NA Somani, K Marshall, H Durrani, K Tang… - BMJ open, 2023 - bmjopen.bmj.com
Objectives Conduct a systematic review of existing frameworks to understand the for-profit
private sector's roles in non-communicable disease (NCD) control and management …

“I just keep quiet about it and act as if everything is alright”–The cascade from trauma to disengagement among adolescents living with HIV in western Kenya

LA Enane, E Apondi, M Omollo, JJ Toromo… - African Journal of …, 2021 - journals.lww.com
Abstract Introduction: There are approximately 1.7 million adolescents living with HIV
(ALHIV, ages 10 to 19) globally, including 110,000 in Kenya. While ALHIV experience poor …

“I have never talked to anyone to free my mind”–challenges surrounding status disclosure to adolescents contribute to their disengagement from HIV care: a qualitative …

JJ Toromo, E Apondi, WM Nyandiko, M Omollo… - BMC Public Health, 2022 - Springer
Introduction Adolescents living with HIV (ALHIV, ages 10–19) experience complex barriers
to care engagement. Challenges surrounding HIV status disclosure or non-disclosure to …

The role of the private sector in noncommunicable disease prevention and management in low-and middle-income countries: A series of systematic reviews and …

K Marshall, P Beaden, H Durrani, K Tang… - … Journal of Qualitative …, 2023 - Taylor & Francis
Purpose Conduct six systematic reviews investigating for-profit private sector roles in NCD
prevention and management in low-and middle-income countries (LMICs) through our a …

“Who am I going to stay with? Who will accept me?”: family‐level domains influencing HIV care engagement among disengaged adolescents in Kenya

C Myers, E Apondi, JJ Toromo, M Omollo… - African Journal of …, 2022 - journals.lww.com
2.1 Study design We conducted this qualitative analysis of family‐level factors influencing
adolescent disengagement as part of a broader study of disengaged ALHIV in the Academic …

Ecosystem of a collaborative research center in project studies: A conceptual framework

JA Moutinho, R Rabechini… - RAM. Revista de …, 2023 - SciELO Brasil
Purpose: To provide a conceptual framework of the ecosystem of a collaborative research
center in project studies. The ecosystem is an environment capable of articulating and …

Stakeholder Perspectives on Research Consent and Reconsent for Procedures Involving Biological Samples and Biobanking of Children and Adolescents Living With …

J Aluoch, A Chory, M Scanlon… - Journal of the …, 2024 - journals.sagepub.com
Objective To explore the perspectives of stakeholders on consenting and reconsenting
children and adolescents living with HIV (CALWH) to participate in research involving …

Mutuality in engaged North–South transnational higher education partnerships: The case of Kenya

L Mule, E Kamaara - Journal of International Development, 2024 - Wiley Online Library
The quality of transnational higher education partnerships (THEPs) has increasingly come
under scrutiny with the growing role of higher education in development. Mutuality has …

Ecossistema de centro de pesquisa universitária em project studies: Um framework conceitual

JA Moutinho, R Rabechini Junior… - RAM. Revista de …, 2023 - SciELO Brasil
Objetivo: Propor o framework conceitual do ecossistema de um centro de pesquisa
universitária em project studies. Trata-se de um ambiente capaz de articular e integrar …