Health-related quality of life and symptom reporting: similarities and differences between children and their parents

C Eiser, JW Varni - European journal of pediatrics, 2013 - Springer
Health-related quality of life (HRQOL) is increasingly seen as important to reflect the impact
of an illness and its treatment on a patient from the patient's perspective. However, there …

Health‐related quality of life after pediatric liver transplantation: a systematic review

A Parmar, SM Vandriel, VL Ng - Liver Transplantation, 2017 - journals.lww.com
With improved survival rates after pediatric liver transplantation (LT), attention is targeting
improving the health‐related quality of life (HRQOL) as an outcome metric. We conducted a …

Pediatric intensive care outcomes: development of new morbidities during pediatric critical care

MM Pollack, R Holubkov, T Funai, A Clark… - Pediatric Critical Care …, 2014 - journals.lww.com
Objective: To investigate significant new morbidities associated with pediatric critical care.
Design: Randomly selected, prospective cohort. Setting: PICU patients from eight medical …

[PDF][PDF] Long‐term medical management of the pediatric patient after liver transplantation: 2013 practice guideline by the American Association for the Study of Liver …

DA Kelly, JC Bucuvalas, EM Alonso… - Liver …, 2013 - Wiley Online Library
VC 2013 American Association for the Study of Liver Diseases. of the American Association
for the Study of Liver Diseases requires a class (reflecting the benefit versus the risk) and …

Paediatric health-related quality of life: what is it and why should we measure it?

L Haverman, PF Limperg, NL Young… - Archives of disease in …, 2017 - adc.bmj.com
As a paediatrician, you follow a number of children with chronic health conditions in your
practice. You provide them with a variety of therapies and would like to know whether your …

Surgery for primary cardiac tumors in children: early and late results in a multicenter European Congenital Heart Surgeons Association study

MA Padalino, VL Vida, G Boccuzzo, M Tonello… - Circulation, 2012 - Am Heart Assoc
Background—To evaluate indications and results of surgery for primary cardiac tumors in
children. Methods and Results—Eighty-nine patients aged≤ 18 years undergoing surgery …

Implementation of electronic patient reported outcomes in pediatric daily clinical practice: The KLIK experience.

L Haverman, HA van Oers, PF Limperg… - Clinical Practice in …, 2014 - psycnet.apa.org
The use of patient reported outcomes (PROs) in pediatric practice is effective in increasing
discussion about emotional and psychosocial functioning. This finding forms the basis for …

[HTML][HTML] Cognitive and academic outcomes after pediatric liver transplantation: Functional Outcomes Group (FOG) results

LG Sorensen, K Neighbors, K Martz, F Zelko… - American Journal of …, 2011 - Elsevier
This multicenter study examined prevalence of cognitive and academic delays in children
following liver transplant (LT). One hundred and forty-four patients ages 5–7 and 2 years …

PedsQL eosinophilic esophagitis module: feasibility, reliability, and validity

JP Franciosi, KA Hommel, CB Bendo… - Journal of pediatric …, 2013 - journals.lww.com
Objective: Eosinophilic esophagitis (EoE) is a chronic esophageal inflammatory condition
with a paucity of information on health-related quality of life (HRQOL). The objective of the …

Psychological functioning and psychosocial issues in pediatric kidney transplant recipients

K Amatya, K Monnin… - Pediatric …, 2021 - Wiley Online Library
Research demonstrates that psychological factors are important for positive transplant
outcomes, though there is little literature that synthesizes these factors in a comprehensive …