Family experiences with palliative care for children at home: a systematic literature review

A Winger, LG Kvarme, B Løyland, C Kristiansen… - BMC palliative …, 2020 - Springer
Background The main goal of pediatric palliative care (PPC) is to improve or maintain the
best possible quality of life (QoL) for the child and their family. PPC can be provided in …

Palliative care in paediatric oncology: an update

N Salins, S Hughes, N Preston - Current oncology reports, 2022 - Springer
Abstract Purpose of this Review The purpose of this review is to describe the evolution of
palliative care in paediatric oncology, the needs of children and their families in a paediatric …

Current understanding of decision-making in adolescents with cancer: a narrative systematic review

E Day, L Jones, R Langner… - Palliative …, 2016 - journals.sagepub.com
Background: Policy guidance and bioethical literature urge the involvement of adolescents
in decisions about their healthcare. It is uncertain how roles and expectations of …

Let's talk about it: supporting family communication during end-of-life care of pediatric patients

ML Marsac, C Kindler, D Weiss… - Journal of palliative …, 2018 - liebertpub.com
Background: Communication is key in optimizing medical care when a child is approaching
end of life (EOL). Research is yet to establish best practices for how medical teams can …

End‐of‐life palliative home care for children with cancer: A qualitative study on parents' experiences

H Hansson, M Björk, SJ Santacroce… - … journal of caring …, 2023 - Wiley Online Library
Background There is insufficient knowledge available about the impact of paediatric
palliative care at home on meeting family needs and ensuring the highest quality of care for …

The development of an instrument that can identify children with palliative care needs: the Paediatric Palliative Screening Scale (PaPaS Scale): a qualitative study …

E Bergstraesser, RD Hain, JL Pereira - BMC palliative care, 2013 - Springer
Background The introduction of paediatric palliative care and referral to specialised teams
still occurs late in the illness trajectory of children with life-limiting diseases. The aim of this …

Specialized home palliative care for adults and children: differences and similarities

G Groh, B Feddersen, M Führer… - Journal of palliative …, 2014 - liebertpub.com
Objective: To compare the provision of specialized home palliative care (SHPC) by the adult
and pediatric SHPC teams at the Munich University Hospital. Methods: All patients treated …

Pediatric palliative care—when quality of life becomes the main focus of treatment

E Bergstraesser - European journal of pediatrics, 2013 - Springer
Pediatric palliative care (PPC) focuses on children and adolescents with life-limiting
diseases. It may be initiated at various points of the disease trajectory, if possible early …

Understanding pediatric palliative care within interdisciplinary palliative programs: a qualitative study

P Rico-Mena, J Güeita-Rodríguez, R Martino-Alba… - BMC Palliative Care, 2023 - Springer
Purpose To describe the process of delivery of pediatric palliative care from the perspective
of a pediatric interdisciplinary team and the children's parents. Methods A qualitative …

[HTML][HTML] “Let's bring her home first.” Patient characteristics and place of death in specialized pediatric palliative home care

HU Bender, MB Riester, GD Borasio… - Journal of pain and …, 2017 - Elsevier
Context Specialized pediatric palliative home care (SPPHC) is the main pediatric palliative
care structure in Germany. Detailed data on patient characteristics and care are sparse …