Integrative review: parent perspectives on care of their child at the end of life

AP Aschenbrenner, JM Winters, RA Belknap - Journal of pediatric nursing, 2012 - Elsevier
This integrative review aims to describe parents' perspectives on end-of-life care for their
children. Fifteen publications from a literature search of the Cochrane databases, CINAHL …

Ethical considerations in critically Ill neonatal and pediatric patients

MT Harting, D Munson, J Linebarger… - Journal of pediatric …, 2023 - Elsevier
The care of critically ill neonates and pediatric patients can be particularly emotionally and
ethically challenging. Emerging evidence suggests that we can improve the patient, family …

Perceived support among families deciding about organ donation for their loved ones: donor vs nondonor next of kin

L Jacoby, J Jaccard - American Journal of Critical Care, 2010 - AACN
Background Families' experiences in the hospital influence their decisions about donating
organs of brain-dead relatives. Meeting families' support needs during this traumatic time is …

An office or a bedroom? Challenges for family-centered care in the pediatric intensive care unit

ME Macdonald, S Liben… - Journal of Child …, 2012 - journals.sagepub.com
Although the modern pediatric intensive care unit (PICU) has followed general pediatrics
and adopted the family-centered care model, little is known about how families prospectively …

A multicenter qualitative investigation of the experiences and perspectives of substitute decision makers who underwent organ donation decisions

AJ Sarti, S Sutherland, A Healey… - Progress in …, 2018 - journals.sagepub.com
Background: Organ donation research has centered on improving donation rates rather than
focusing on the experience and impact on substitute decision makers. The purpose of this …

Perinatal and pediatric issues in palliative and end-of-life care from the 2011 Summit on the Science of Compassion

JM Youngblut, D Brooten - Nursing Outlook, 2012 - Elsevier
More than 25,000 infants and children die in US hospitals annually; 86% occur in the NICU
or PICU. Parents see the child's pain and suffering and, near the point of death, must decide …

Observations on the ethical and social aspects of disorders of consciousness

E Racine, C Rodrigue, JL Bernat, R Riopelle… - Canadian journal of …, 2010 - cambridge.org
The care of chronically unconscious patients raises vexing medical, ethical, and social
questions concerning diagnosis, prognosis, communication with family members, and …

[PDF][PDF] The organ donation process: a humanist perspective based on the experience of nursing care

C Monforte‐Royo, MV Roqué - Nursing Philosophy, 2012 - academia.edu
The organ donation and transplant process has, since it began in 1950, become a familiar
feature of our society. The World Transplant Registry, which is administered by Spain's …

Accommodating religious beliefs in the ICU: a narrative account of a disputed death

ML Smith, AL Flamm - Narrative Inquiry in Bioethics, 2011 - muse.jhu.edu
Despite widespread acceptance in the United States of neurological criteria to determine
death, clinicians encounter families who object, often on religious grounds, to the …

[HTML][HTML] Family and transplant professionals' views of organ recovery before circulatory death for imminently dying patients: A qualitative study using semistructured …

CJ Zimmermann, ND Baggett, LJ Taylor… - American Journal of …, 2019 - Elsevier
Donation before circulatory death for imminently dying patients has been proposed to
address organ scarcity and harms of nondonation. To characterize stakeholder attitudes …