'It struck at the heart of who I thought I was': A meta‐synthesis of the qualitative literature examining the experiences of people with multiple sclerosis

J Desborough, C Brunoro, A Parkinson… - Health …, 2020 - Wiley Online Library
Background People with multiple sclerosis (MS) have varied experiences and approaches
to self‐management. This review aimed to explore the experiences of people with MS, and …

Disease progression in multiple sclerosis: a literature review exploring patient perspectives

EG Celius, H Thompson, M Pontaga… - Patient preference …, 2021 - Taylor & Francis
Purpose Multiple sclerosis (MS) prognosis is often uncertain. This literature review considers
patients' understanding of, and perspectives on, MS progression to better comprehend the …

[HTML][HTML] Web-Based Health Information Seeking by People Living With Multiple Sclerosis: Qualitative Investigation of the Multiple Sclerosis Online Course

W Bevens, R Davenport, S Neate, M Yu… - Journal of Medical …, 2024 - jmir.org
Background Digital technologies have afforded people living with multiple sclerosis (MS)
access to telehealth consultations, diagnostic tools, and monitoring. Although health care …

Experiences of and attitudes to lifestyle modification for the management of multiple sclerosis: A qualitative analysis of free‐text survey data

SL Neate, A Donald, GA Jelinek, N Nag - Health Expectations, 2022 - Wiley Online Library
Background Growing evidence suggests a role of lifestyle modification in improved health
outcomes for people with multiple sclerosis (pwMS); however, perspectives of pwMS who …

Communication between persons with multiple sclerosis and their health care providers: A scoping review

CM Thompson, MD Pulido, S Babu, N Zenzola… - Patient Education and …, 2022 - Elsevier
Objectives This study undertakes a scoping review of research about communication
between persons with MS and their health care providers. Design PubMed, PsycInfo …

Biomedical variables and adaptation to disease and health-related quality of life in polish patients with MS

J Dymecka, M Bidzan - … journal of environmental research and public …, 2018 - mdpi.com
The aim of this research was to assess the level of adaptation to multiple sclerosis (Sclerosis
multiplex; MS) and health-related quality of life (HRQoL) of the study population as well as to …

Perceived social support, mental health, and marital satisfaction in multiple sclerosis patients

Ş Özen, T Karataş, Ü Polat - Perspectives in psychiatric care, 2021 - Wiley Online Library
Purpose This study aimed to examine the patients' perceived social support, mental health,
and marital satisfaction. Design and Methods Data were collected via Patient Information …

Consenting on principles of rehabilitation nursing care: a Delphi study

S Suter-Riederer, RM Imhof, C Gabriel… - Rehabilitation …, 2018 - journals.lww.com
Purpose Patient-centeredness, evidence-based interventions, and interdisciplinary
teamwork have been described as key in neurological rehabilitation nursing. In order to …

Delivering person-centred care in nursing

B Price - 2022 - torrossa.com
This textbook is written for students learning how to nurse. But it will also be of value to
registered nurses who are re-evaluating their work. The book is designed to help you to …

Dietary responses to a multiple sclerosis diagnosis: a qualitative study

RD Russell, LJ Black, JL Sherriff… - European Journal of …, 2019 - nature.com
Background/objectives Multiple sclerosis (MS) is an immune-mediated disease with no
known cure and insufficient evidence to support a special therapeutic diet to alter symptom …