[HTML][HTML] Inequitable access to transplants: adults with impaired decision-making capacity

RL Thom, A Dalle-Ave, EM Bunnik… - Transplant …, 2022 - frontierspartnerships.org
Inequitable access to deceased donor organs for transplantation has received considerable
scrutiny in recent years. Emerging evidence suggests patients with impaired decision …

Consideration of children with intellectual disability as candidates for solid organ transplantation—a practice in evolution

A Wightman, D Diekema… - Pediatric …, 2018 - Wiley Online Library
Children with intellectual disability were historically excluded from consideration as
recipients of solid organ transplants. In light of an evolution in provider practices, this …

[HTML][HTML] Access to transplantation for persons with intellectual disability: Strategies for nondiscrimination

A Chen, M Ahmad, A Flescher, WL Freeman… - American Journal of …, 2020 - Elsevier
Disqualifying patients with intellectual disabilities (ID) from transplantation has received
growing attention from the media, state legislatures, the Office of Civil Rights, and recently …

Heart transplantation in children with Down syndrome

J Godown, D Fountain, N Bansal… - Journal of the …, 2022 - Am Heart Assoc
Background Children with Down syndrome (DS) have a high risk of cardiac disease that
may prompt consideration for heart transplantation (HTx). However, transplantation in …

[HTML][HTML] Functional status at listing predicts waitlist and posttransplant mortality in pediatric liver transplant candidates

ER Perito, J Bucuvalas, JC Lai - American Journal of Transplantation, 2019 - Elsevier
Functional impairment is associated with mortality in adult liver transplant candidates. This
has not been studied in pediatric liver transplant candidates. United Network for Organ …

Comparing kidney transplant rates and outcomes among adults with and without intellectual and developmental disabilities

BN Hand, JM Hyer, A Schenk, A Coyne… - JAMA …, 2023 - jamanetwork.com
Importance Improving equity in organ transplant access for people with intellectual and
developmental disabilities (IDD) is a topic of social discourse in mainstream media, state …

Prevalence and long-term outcomes of solid organ transplant in children with intellectual disability

A Wightman, MC Bradford, E Hsu, HL Bartlett… - The Journal of …, 2021 - Elsevier
Objectives To describe the prevalence and long-term outcomes of kidney, liver, and heart
transplant for children with an intellectual disability. Study design We performed a …

Heart transplantation in children with intellectual disability: An analysis of the UNOS database

AN Goel, A Iyengar, K Schowengerdt… - Pediatric …, 2017 - Wiley Online Library
Heart transplantation in children with intellectual disability (ID) is an issue of debate due to
the shortage of available donor organs. We sought to perform the first large‐scale …

Prevalence and outcomes of heart transplantation in children with intellectual disability

A Wightman, HL Bartlett, Q Zhao… - Pediatric …, 2017 - Wiley Online Library
Heart transplantation in children with intellectual disability is a controversial issue. We
sought to describe the prevalence and outcomes of heart transplantation in children with …

[HTML][HTML] Confronting and eliminating inequities in the organ transplantation system

M Hackmann, RA English, KW Kizer… - Realizing the Promise …, 2022 - ncbi.nlm.nih.gov
The preceding chapter established that a trustworthy organ transplantation system must
adhere to ethical principles and have transparent processes and results. The committee …