A developmental-contextual model of couples coping with chronic illness across the adult life span.

CA Berg, R Upchurch - Psychological bulletin, 2007 - psycnet.apa.org
A developmental-contextual model of couples coping with chronic illness is presented that
views chronic illness as affecting the adjustment of both the patient and the spouse such that …

Shared decision-making in dementia: A review of patient and family carer involvement

LM Miller, CJ Whitlatch, KS Lyons - Dementia, 2016 - journals.sagepub.com
This paper reviews empirical findings concerning the decision-making process of persons
with dementia and their family carers, with a particular focus on the extent and determinants …

[图书][B] Caregiving in the illness context

T Revenson, K Griva, A Luszczynska, V Morrison… - 2016 - books.google.com
How does caregiving affect health and well-being and what resources help caregivers? This
book provides a synthesis of psychological research on caregiver stress and brings attention …

From personhood to citizenship: Broadening the lens for dementia practice and research

R Bartlett, D O'Connor - Journal of aging studies, 2007 - Elsevier
Personhood has provided a lens for conceptualising dementia practice and research for
over ten years. It has afforded the rationale and language for improving care and for raising …

How do persons with dementia participate in decision making related to health and daily care? A multi-case study

KL Smebye, M Kirkevold, K Engedal - BMC health services research, 2012 - Springer
Background Many countries have passed laws giving patients the right to participate in
decisions about health care. People with dementia cannot be assumed to be incapable of …

Beliefs and attitudes of older adults and carers about deprescribing of medications: a qualitative focus group study

E Reeve, LF Low, SN Hilmer - British Journal of General Practice, 2016 - bjgp.org
Background Deprescribing describes the complex process that is required for the safe and
effective cessation of medications that are likely to cause more harm than benefit …

Being central to decision making means I am still here!: The essence of decision making for people with dementia

D Fetherstonhaugh, L Tarzia, R Nay - Journal of aging studies, 2013 - Elsevier
The ability to make choices and decisions, and to have those decisions upheld, is central to
self-determination. For people living with a diagnosis of dementia, however, it can be difficult …

Shared decision-making for people living with dementia in extended care settings: a systematic review

RL Daly, F Bunn, C Goodman - BMJ open, 2018 - bmjopen.bmj.com
Background Shared decision-making is recognised as an important element of person-
centred dementia care. Objectives The aim of this review was to explore how people living …

Family caregivers, patients and physicians: ethical guidance to optimize relationships

S Mitnick, C Leffler, VL Hood… - Journal of general …, 2010 - Springer
Family caregivers play a major role in maximizing the health and quality of life of more than
30 million individuals with acute and chronic illness. Patients depend on family caregivers …

Addressing the challenges to successful recruitment and retention in Alzheimer's disease clinical trials

JD Grill, J Karlawish - Alzheimer's research & therapy, 2010 - Springer
Among the key challenges in Alzheimer's disease drug development is the timely
completion of clinical trials. Unfortunately, clinical trials often suffer from slow or insufficient …