Paediatric palliative care and intellectual disability—a unique context

JK Duc, AR Herbert, HS Heussler - Journal of Applied Research …, 2017 - Wiley Online Library
Background Paediatric palliative care is a nuanced area of practice with additional
complexities in the context of intellectual disability. There is currently minimal research to …

Home-based care for children with serious illness: Ecological framework and research implications

JY Boyden, DL Hill, G LaRagione, J Wolfe, C Feudtner - Children, 2022 - mdpi.com
Care for US children living with serious illness and their families at home is a complex and
patchwork system. Improving home-based care for children and families requires a …

End of life and people with intellectual disability

RJ Stancliffe, M Wiese, S Read - Journal of …, 2017 - researchdirect.westernsydney.edu …
It has only been four years since the Journal of Applied Research in Intellectual Disabilities
(JARID) last published a special issue on Death and Dying, edited by Stuart Todd, Jane …

Paediatric Palliative Care National Action Plan Project: Background Literature Review

S Ekberg, A Bowers, N Bradford, K Ekberg, M Rolfe… - 2021 - eprints.qut.edu.au
The development of a paediatric palliative care workforce, models of care, and research
evidence has advanced rapidly in recent decades. This provides a solid foundation for …

End-of-life care

SL Friedman, DT Helm - Health Care for People with Intellectual and …, 2016 - Springer
With the advent of the modern hospice movement in mid-twentieth century, longer life
expectancy reflective of medical advances, growing attention to ethical issues, and …

Nursing Home Setting

SL Friedman - Health Care for People with Intellectual and …, 2016 - Springer
More people with intellectual and developmental disabilities (IDD) experience better health
and longer lives than in previous years. Although fewer individuals reside in congregate …

[引用][C] 临终护理继续教育项目在护理工作中的应用

黄玉 - 现代医药卫生, 2016