A review of race and ethnicity in hospice and palliative medicine research: representation matters

RL Rhodes, NJ Barrett, DB Ejem, DH Sloan… - Journal of Pain and …, 2022 - Elsevier
Context Despite documented racial and ethnic disparities in care, there is significant
variability in representation, reporting, and analysis of race and ethnic groups in the hospice …

Racism exposure and trauma accumulation perpetuate pain inequities—advocating for change (RESTORATIVE): A conceptual model.

AM Hood, CA Morais, LSN Fields… - American …, 2023 - psycnet.apa.org
Experiences of racism occur across a continuum from denial of services to more subtle forms
of discrimination and exact a significant toll. These multilevel systems of oppression …

Inequities in access to palliative and end-of-life care in the black population in Canada: a scoping review

N Bassah, J Beranek, M Kennedy, J Onabadejo… - International Journal for …, 2024 - Springer
Improving equity and early access to palliative care for underserved populations in Canada
is a priority. Little is known regarding access to palliative and end-of-life care in the Black …

Palliative Care Clinician Perspectives on Person-Centered End-of-Life Communication for Racially and Culturally Minoritized Persons with Cancer

WE Rosa, M McDarby, H Buller, BR Ferrell - Cancers, 2023 - mdpi.com
Simple Summary Racially and culturally minoritized persons with serious illness receive
subpar and potentially harmful care at end of life. Despite health equity initiatives, little is …

Anxiety, depression, quality of life, caregiver burden, and perceptions of caregiver-centered communication among black and white hospice family caregivers

LT Starr, K Bullock, K Washington, S Aryal… - Journal of palliative …, 2022 - liebertpub.com
Background: Anxiety, depression, and reduced quality of life (QOL) are common problems
for hospice family caregivers, but it is unknown if disparities in these experiences exist …

Pain and associated factors in nursing home residents

CS Cole, J Blackburn, JS Carpenter, CX Chen… - Pain Management …, 2023 - Elsevier
Background Understanding factors associated with risk of pain allows residents and
clinicians to plan care and set priorities, however, factors associated with pain in nursing …

“They Did Not Know How to Talk to Us and It Seems That They Didn't Care:” Narratives from Bereaved Family Members of Black Veterans

A Kutney-Lee, KL Rodriguez, M Ersek… - Journal of Racial and …, 2023 - Springer
Racial disparities in the quality of health care services, including end of life (EOL) care, are
well-documented. While several explanations for these inequities have been proposed, few …

Improving Outcomes for ICU Family Members: The Role of Spiritual Care

AM Torke, S Varner-Perez, ES Burke… - Journal of Palliative …, 2024 - liebertpub.com
Having a family member hospitalized in the intensive care unit (ICU) can be a stressful
experience for family members, encompassing both psychological and spiritual distress …

Social Workers as Leaders for Facilitating Trauma-Informed Palliative Care in the Outpatient Palliative Care Clinic

J DiBiase - Journal of Social Work in End-of-Life & Palliative Care, 2023 - Taylor & Francis
Palliative care social workers are trained to identify how trauma manifests over the course of
serious and chronic illness. This expertise can guide patients and team members to ensure …

Racial Differences in Treatment Intensity at the End of Life Among Older Adults with Heart Failure: Evidence from the Health and Retirement Study

SG McCleskey, A Vargas Bustamante… - Journal of Palliative …, 2024 - liebertpub.com
Background: Black Americans experience the highest prevalence of heart failure (HF) and
the worst clinical outcomes of any racial or ethnic group, but little is known about end-of-life …