The added value of a European Reference Network on rare and complex connective tissue and musculoskeletal diseases: insights after the first 5 years of the ERN …
R Talarico, S Aguilera, T Alexander… - Clinical and …, 2022 - sfera.unife.it
In order to address the main challenges related to the rare diseases (RDs) the European
Commission launched the European Reference Networks (ERNs), virtual networks involving …
Commission launched the European Reference Networks (ERNs), virtual networks involving …
Being a caregiver of a Behçet's syndrome patient: challenges and perspectives during a complex journey
R Talarico, D Marinello, A Manzo, S Cannizzo… - Orphanet Journal of …, 2021 - Springer
Background As often seen in many chronic diseases, the disease impact on patients also
induces a significant impact on the quality of life (QoL) of caregivers. Caregivers are the …
induces a significant impact on the quality of life (QoL) of caregivers. Caregivers are the …