The social ecology of power in participatory health research

M Roura - Qualitative Health Research, 2021 - journals.sagepub.com
As increasing value is placed on community engagement, co-creation, and
transdisciplinarity as essential ingredients to improve policies; participatory health research …

Recruiting and retaining people with disabilities for qualitative health research: Challenges and solutions

JR Banas, S Magasi, K The… - Qualitative Health …, 2019 - journals.sagepub.com
There are 56.7 million people with disabilities (PWD) living in the United States; yet, PWD
are significantly underrepresented in health research. Even when researchers purposively …

Recruitment and consent of adults with intellectual disabilities in a classic grounded theory research study: Ethical and methodological considerations

E Carey, C Griffiths - Disability & Society, 2017 - Taylor & Francis
Researchers are required to provide opportunities for people with intellectual disabilities to
be included in research which affects their lives. This paper reports on one research study …

Are individuals with intellectual and developmental disabilities included in research? A review of the literature

KE Jones, S Ben-David, R Hole - Research and Practice in …, 2020 - Taylor & Francis
The rights of people with intellectual and developmental disabilities to be included in
research is increasingly being recognised. Given this, there is a need for further …

Revisiting photovoice: Perceptions of dementia among researchers with intellectual disability

K Watchman, K Mattheys, A Doyle… - Qualitative Health …, 2020 - journals.sagepub.com
There is limited global evidence exploring perceptions of dementia among people with
intellectual disabilities. This article presents findings from the first known study where an …

Hands-on experiences with assistive technologies for people with intellectual disabilities: Opportunities and challenges

JC Torrado, J Gomez, G Montoro - IEEE Access, 2020 - ieeexplore.ieee.org
In the recent years, the use of Information and Communication Technologies (ICTs) to
enhance the educational and developmental interventions of individuals with intellectual …

[HTML][HTML] Working collaboratively with an online advisory group of people with learning disabilities in covid-times: carrier pigeons, cats and drones

E Leishman, D Quilgars, D Abbott, S Clark… - Research involvement …, 2023 - Springer
While much attention and emphasis have been given to the role and value of advisory
groups in social science research, less has been published on the experiences of those …

Ethical considerations for disability-inclusive gender-based violence research: Reflections from a South African qualitative case study

I van der Heijden, J Harries, N Abrahams - Global public health, 2019 - Taylor & Francis
Globally, women with disabilities experience heightened and unique forms of violence
compared to men with disabilities and women without disabilities. Yet formalised guidelines …

Exploring academics' views on designs, methods, characteristics and outcomes of inclusive health research with people with intellectual disabilities: a modified Delphi …

TK Frankena, J Naaldenberg, M Cardol, JV Meijering… - BMJ open, 2016 - bmjopen.bmj.com
Background The British Medical Journal's (BMJ's) patient revolution strives for collaboration
with patients in healthcare and health research. This paper studies collaboration with people …

Barriers to gender-based violence services and support for women with disabilities in Cape Town, South Africa

I Van der Heijden, J Harries, N Abrahams - Disability & Society, 2020 - Taylor & Francis
Abstract Globally, South Africa has one of the highest rates of gender based violence (GBV).
While little is known about the levels of GBV against women with disabilities in the country …