[HTML][HTML] Internet-based direct-to-consumer genetic testing: a systematic review
L Covolo, S Rubinelli, E Ceretti, U Gelatti - Journal of medical Internet …, 2015 - jmir.org
Background Direct-to-consumer genetic tests (DTC-GT) are easily purchased through the
Internet, independent of a physician referral or approval for testing, allowing the retrieval of …
Internet, independent of a physician referral or approval for testing, allowing the retrieval of …
[PDF][PDF] Personal data cooperatives–a new data governance framework for data donations and precision health
E Hafen - The ethics of medical data donation, 2019 - library.oapen.org
Personalized health research depends on aggregated sets of personal data from millions of
people. Given that personal data can be copied, individuals are entitled to copies of their …
people. Given that personal data can be copied, individuals are entitled to copies of their …
Open sharing of genomic data: Who does it and why?
T Haeusermann, B Greshake, A Blasimme, D Irdam… - PLoS …, 2017 - journals.plos.org
We explored the characteristics and motivations of people who, having obtained their
genetic or genomic data from Direct-To-Consumer genetic testing (DTC-GT) companies …
genetic or genomic data from Direct-To-Consumer genetic testing (DTC-GT) companies …
Direct-to-consumer genomics on the scales of autonomy
E Vayena - Journal of medical ethics, 2015 - jme.bmj.com
Direct-to-consumer (DTC) genetic services have generated enormous controversy from their
first emergence. A dramatic recent manifestation of this is the Food and Drug …
first emergence. A dramatic recent manifestation of this is the Food and Drug …
[HTML][HTML] Beyond clinical utility: the multiple values of DTC genetics
M Turrini, B Prainsack - Applied & translational genomics, 2016 - Elsevier
One point of consensus in the otherwise very controversial discussion about the benefits
and dangers of DTC genetics in the health domain is the lack of substantial clinical utility. At …
and dangers of DTC genetics in the health domain is the lack of substantial clinical utility. At …
Health orientation, knowledge, and attitudes toward genetic testing and personalized genomic services: preliminary data from an Italian sample
S Oliveri, M Masiero, P Arnaboldi… - BioMed Research …, 2016 - Wiley Online Library
Objective. The study aims at assessing personality tendencies and orientations that could be
closely correlated with knowledge, awareness, and interest toward undergoing genetic …
closely correlated with knowledge, awareness, and interest toward undergoing genetic …
Utilization and uptake of clinical genetics services in high-income countries: a scoping review
Ongoing rapid growth in the need for genetic services has the potential to severely strain the
capacity of the clinical genetics workforce to deliver this care. Unfortunately, assessments of …
capacity of the clinical genetics workforce to deliver this care. Unfortunately, assessments of …
“I would rather have it done by a doctor”—laypeople's perceptions of direct-to-consumer genetic testing (DTC GT) and its ethical implications
M Schaper, S Wöhlke, S Schicktanz - Medicine, Health Care and …, 2019 - Springer
Direct-to-consumer genetic testing (DTC GT) has been available for several years now, with
varying degrees of regulation across different countries. Despite a restrictive legal …
varying degrees of regulation across different countries. Despite a restrictive legal …
[HTML][HTML] Young people's moral attitudes and motivations towards direct-to-consumer genetic testing for inherited risk of Alzheimer disease
G Pavarini, L Hamdi, J Lorimer, I Singh - European Journal of Medical …, 2021 - Elsevier
Abstract Purpose Since the US Food and Drug Administration approved sales of genetic
tests for late-onset Alzheimer's disease (LOAD) risk, a heated debate has arisen over …
tests for late-onset Alzheimer's disease (LOAD) risk, a heated debate has arisen over …
User attitudes on direct-to-consumer genetic testing
Advances in biotechnology now allow users to obtain their genetic information, including
ancestry and predisposition to various diseases and health issues, with relative ease. With …
ancestry and predisposition to various diseases and health issues, with relative ease. With …