Objectives This systematic review aimed to 1) describe the quality of life (QOL) of parents of
children with childhood-onset epilepsy (CWE), 2) identify factors associated with parental …

Background Dravet syndrome (DS) is a developmental and epileptic encephalopathy with
onset in the first year of life. At onset, the child displays normal development, but during the …

Background Teachers in high-stress roles face increasing psychological distress such as
anxiety and depression, underscoring the need for validated assessment instruments. Given …

Purpose The literature on caregiver burden tends to focus on children and teenagers with
epilepsy and less on adults. As caregiving is a dynamic, complex process across the …

Purpose To garner the views of young people with epilepsy and caregivers regarding the
impact of COVID-19 and subsequent restrictions in the UK. Mehods An online survey was …

Introduction Dravet syndrome (DS) is a rare developmental and epileptic encephalopathy.
This study estimated cost, cost-driving factors and quality of life (QoL) in patients with Dravet …

Objectives To assess the prevalence of psychopathology and the level of stress in parents of
children with severe epilepsy to gain a better understanding of parental support needs …

Purpose This study was designed to assess the effects of epilepsy severity, family resilience,
and social support on depression in primary caregivers of children with epilepsy (CWE), and …

Objective Early-onset epilepsy has broad physical and psychosocial impacts, and parents
have a wide variety of information needs. This systematic review set out to assess 1) …

There are potent evidence-based psychological treatments for youth with mental health
needs, yet they are rarely implemented in clinical practice, especially for youth with mental …