Palliative care in heart failure: a position statement from the palliative care workshop of the Heart Failure Association of the European Society of Cardiology

T Jaarsma, JM Beattie, M Ryder… - European journal of …, 2009 - Wiley Online Library
Heart failure is a serious condition and equivalent to malignant disease in terms of symptom
burden and mortality. At this moment only a comparatively small number of heart failure …

[HTML][HTML] Enhancing patient-professional communication about end-of-life issues in life-limiting conditions: a critical review of the literature

S Barnes, C Gardiner, M Gott, S Payne, B Chady… - Journal of pain and …, 2012 - Elsevier
CONTEXT: The End of Life Care Strategy for England highlights effective communication
between patients and professionals as key to facilitating patient involvement in advance …

Decision making in advanced heart failure: a scientific statement from the American Heart Association

LA Allen, LW Stevenson, KL Grady, NE Goldstein… - Circulation, 2012 - Am Heart Assoc
Shared decision making for advanced heart failure has become both more challenging and
more crucial as duration of disease and treatment options have increased. High-quality …

Chinese oncology nurses' experience on caring for dying patients who are on their final days: A qualitative study

RS Zheng, QH Guo, FQ Dong, RG Owens - International journal of nursing …, 2015 - Elsevier
Background Caring for dying patients is stressful but an unavoidable responsibility of
nurses. However, little is known about Chinese oncology nurses' experience of caring for …

Prognostic significance of the “surprise” question in cancer patients

AH Moss, JR Lunney, S Culp, M Auber… - Journal of palliative …, 2010 - liebertpub.com
Background: Physicians consistently overestimate survival for patients with cancer. The
“surprise” question—“Would I be surprised if this patient died in the next year?”—improves …

ESMO Clinical Practice Guidelines for the management of refractory symptoms at the end of life and the use of palliative sedation

NI Cherny - Annals of oncology, 2014 - annalsofoncology.org
In patients with advanced cancer, a readiness to address pain and other intolerable
symptoms is a medical and moral imperative [1]. This has been described by Roy as the …

Discussions of the kidney disease trajectory by elderly patients and nephrologists: a qualitative study

JO Schell, UD Patel, KE Steinhauser… - American Journal of …, 2012 - Elsevier
BACKGROUND: Elderly patients with advanced kidney disease experience considerable
disability, morbidity, and mortality. Little is known about the impact of physician-patient …

[HTML][HTML] Use of video to facilitate end-of-life discussions with patients with cancer: a randomized controlled trial

A El-Jawahri, LM Podgurski, AF Eichler… - Journal of Clinical …, 2010 - ncbi.nlm.nih.gov
Purpose To determine whether the use of a goals-of-care video to supplement a verbal
description can improve end-of-life decision making for patients with cancer. Methods Fifty …

Patients, providers, and systems need to acquire a specific set of competencies to achieve truly patient-centered care

E Bernabeo, ES Holmboe - Health Affairs, 2013 - healthaffairs.org
Studies show that patients want to be more involved in their own health care. Yet insufficient
attention has been paid to the specific competencies of both patients and providers that are …

[HTML][HTML] “I go into crisis when…”: ethics of care and moral dilemmas in palliative care

L De Panfilis, S Di Leo, C Peruselli, L Ghirotto… - BMC palliative …, 2019 - Springer
Background Recognising and knowing how to manage ethical issues and moral dilemmas
can be considered an ethical skill. In this study, ethics of care is used as a theoretical …