Using patient perspectives to inform better clinical trial design and conduct: current trends and future directions

SD Faulkner, F Somers, M Boudes, B Nafria… - Pharmaceutical …, 2023 - Springer
The approach to patient engagement (PE) in drug development has changed rapidly due to
many factors, including the complexity of innovative drugs and the need to demonstrate …

[HTML][HTML] A systematic review of models of patient engagement in the development and life cycle management of medicines

FI Auwal, C Copeland, EJ Clark, C Naraynassamy… - Drug Discovery …, 2023 - Elsevier
There is currently no universally agreed code of practice for patient engagement (PE), and
existing guidelines do not fully cover the scope across medicine development and …

Supporting health researchers to realize meaningful patient involvement in research: exploring researchers' experiences and needs

S Harmsen, CACM Pittens, E Vroonland… - Science and Public …, 2022 - academic.oup.com
Involving patients in health research requires a new way of working for all stakeholders
involved, including researchers. This research aimed (1) to gain deeper insight into the …

Stakeholder engagement in eight comparative effectiveness trials in African Americans and Latinos with asthma

T Dy, WJ Hamilton, CB Kramer, A Apter… - Research Involvement …, 2022 - Springer
Background The effects of stakeholder engagement, particularly in comparative
effectiveness trials, have not been widely reported. In 2014, eight comparative effectiveness …

Patient organisations' views, motivations and experiences on patient involvement in cancer research: a pilot study in Portugal

C Roquette, S Crisóstomo, T Milagre, RS Ribeiro… - BMJ open, 2024 - bmjopen.bmj.com
Objectives To characterise Portuguese cancer-related patient organisations and analyse
their views, motivations and experiences on patient involvement in cancer research. Design …

Patient Engagement and Co-creation in Healthcare Services: A Scoping Review

T Sundaramurthi, S Mathews, E Bermudez… - Patient Experience …, 2024 - pxjournal.org
Objective: The objective of this review was to find literature related to the concepts of patient
engagement and co-creation in healthcare services and identify models and/or frameworks …

From Innovator Result-driven to Multi-actor Impact-oriented Public–Private Partnerships: Integrating the Patient Perspective

RLA de Vrueh, JSB de Vlieger, KM Orrling… - … -Private-Partnerships in …, 2024 - Springer
Abstract Public–Private Partnerships (PPPs) have been crucial in medicine research and
development (R&D) for decades. Initially, PPPs involved private and academic innovators …