Children with medical complexity: an emerging population for clinical and research initiatives
Children with medical complexity (CMC) have medical fragility and intensive care needs that
are not easily met by existing health care models. CMC may have a congenital or acquired …
are not easily met by existing health care models. CMC may have a congenital or acquired …
The patient-centered medical home: a systematic review
GL Jackson, BJ Powers, R Chatterjee… - Annals of internal …, 2013 - acpjournals.org
Background: The patient-centered medical home (PCMH) describes mechanisms for
organizing primary care to provide high-quality care across the full range of individuals' …
organizing primary care to provide high-quality care across the full range of individuals' …
Patterns and costs of health care use of children with medical complexity
BACKGROUND AND OBJECTIVE: Health care use of children with medical complexity
(CMC), such as those with neurologic impairment or other complex chronic conditions …
(CMC), such as those with neurologic impairment or other complex chronic conditions …
Factors associated with age of diagnosis among children with autism spectrum disorders
DS Mandell, MM Novak, CD Zubritsky - Pediatrics, 2005 - publications.aap.org
Objective. Early diagnosis of children with autism spectrum disorders (ASD) is critical but
often delayed until school age. Few studies have identified factors that may delay diagnosis …
often delayed until school age. Few studies have identified factors that may delay diagnosis …
Hospital utilization and characteristics of patients experiencing recurrent readmissions within children's hospitals
Context Early hospital readmission is emerging as an indicator of care quality. Some
children with chronic illnesses may be readmitted on a recurrent basis, but there are limited …
children with chronic illnesses may be readmitted on a recurrent basis, but there are limited …
Evidence for family-centered care for children with special health care needs: a systematic review
KA Kuhlthau, S Bloom, J Van Cleave, AA Knapp… - Academic pediatrics, 2011 - Elsevier
OBJECTIVE: Family-centered care (FCC) has received widespread endorsement for use in
care in the United States. In this study, we conducted a systematic review of evidence for …
care in the United States. In this study, we conducted a systematic review of evidence for …
Unmet dental needs and barriers to care for children with significant special health care needs
LP Nelson, A Getzin, D Graham, J Zhou… - Pediatric …, 2011 - ingentaconnect.com
Purpose: The purpose of this study was to conduct the first known large scale survey of
parents of children with special health care needs (CSHCN) to determine their child's: oral …
parents of children with special health care needs (CSHCN) to determine their child's: oral …
Children with medical complexity: a scoping review of interventions to support caregiver stress
H Edelstein, J Schippke, S Sheffe… - Child: care, health and …, 2017 - Wiley Online Library
Background Caring for children with chronic and complex medical needs places
extraordinary stress on parents and other family members. A scoping review was …
extraordinary stress on parents and other family members. A scoping review was …
Patient-and family-centered care coordination: a framework for integrating care for children and youth across multiple systems
Council on Children with Disabilities and Medical … - …, 2014 - publications.aap.org
Understanding a care coordination framework, its functions, and its effects on children and
families is critical for patients and families themselves, as well as for pediatricians, pediatric …
families is critical for patients and families themselves, as well as for pediatricians, pediatric …
A review of the evidence for the medical home for children with special health care needs
CJ Homer, K Klatka, D Romm, K Kuhlthau… - …, 2008 - publications.aap.org
CONTEXT. The receipt of health care in a medical home is increasingly touted as a
fundamental basis for improved care for persons with chronic conditions, yet the evidence …
fundamental basis for improved care for persons with chronic conditions, yet the evidence …