Children with medical complexity: an emerging population for clinical and research initiatives

E Cohen, DZ Kuo, R Agrawal, JG Berry… - …, 2011 - publications.aap.org
Children with medical complexity (CMC) have medical fragility and intensive care needs that
are not easily met by existing health care models. CMC may have a congenital or acquired …

The patient-centered medical home: a systematic review

GL Jackson, BJ Powers, R Chatterjee… - Annals of internal …, 2013 - acpjournals.org
Background: The patient-centered medical home (PCMH) describes mechanisms for
organizing primary care to provide high-quality care across the full range of individuals' …

Patterns and costs of health care use of children with medical complexity

E Cohen, JG Berry, X Camacho, G Anderson… - …, 2012 - publications.aap.org
BACKGROUND AND OBJECTIVE: Health care use of children with medical complexity
(CMC), such as those with neurologic impairment or other complex chronic conditions …

Factors associated with age of diagnosis among children with autism spectrum disorders

DS Mandell, MM Novak, CD Zubritsky - Pediatrics, 2005 - publications.aap.org
Objective. Early diagnosis of children with autism spectrum disorders (ASD) is critical but
often delayed until school age. Few studies have identified factors that may delay diagnosis …

Hospital utilization and characteristics of patients experiencing recurrent readmissions within children's hospitals

JG Berry, DE Hall, DZ Kuo, E Cohen, R Agrawal… - Jama, 2011 - jamanetwork.com
Context Early hospital readmission is emerging as an indicator of care quality. Some
children with chronic illnesses may be readmitted on a recurrent basis, but there are limited …

Evidence for family-centered care for children with special health care needs: a systematic review

KA Kuhlthau, S Bloom, J Van Cleave, AA Knapp… - Academic pediatrics, 2011 - Elsevier
OBJECTIVE: Family-centered care (FCC) has received widespread endorsement for use in
care in the United States. In this study, we conducted a systematic review of evidence for …

Unmet dental needs and barriers to care for children with significant special health care needs

LP Nelson, A Getzin, D Graham, J Zhou… - Pediatric …, 2011 - ingentaconnect.com
Purpose: The purpose of this study was to conduct the first known large scale survey of
parents of children with special health care needs (CSHCN) to determine their child's: oral …

Children with medical complexity: a scoping review of interventions to support caregiver stress

H Edelstein, J Schippke, S Sheffe… - Child: care, health and …, 2017 - Wiley Online Library
Background Caring for children with chronic and complex medical needs places
extraordinary stress on parents and other family members. A scoping review was …

Patient-and family-centered care coordination: a framework for integrating care for children and youth across multiple systems

Council on Children with Disabilities and Medical … - …, 2014 - publications.aap.org
Understanding a care coordination framework, its functions, and its effects on children and
families is critical for patients and families themselves, as well as for pediatricians, pediatric …

A review of the evidence for the medical home for children with special health care needs

CJ Homer, K Klatka, D Romm, K Kuhlthau… - …, 2008 - publications.aap.org
CONTEXT. The receipt of health care in a medical home is increasingly touted as a
fundamental basis for improved care for persons with chronic conditions, yet the evidence …