The study team conducted a systematic review of pediatric and adolescent palliative cancer
care literature from 1995 to 2015 using four databases to inform development of a palliative …

Pediatric palliative care aims to alleviate suffering and improve the quality of life of children
with serious disease and increase support for their parents and other family members …

Background: Despite standardization in disease assessments and curative interventions for
childhood cancer, palliative assessments and psychosocial interventions remain diverse …

A growing evidence base highlights the negative impact of poor psychosocial care at end-of-
life. Adolescents and young adults (AYAs) 15–39 years of age with cancer face unique …

Research demonstrates that severe forms of grief and grief-related pathology exist in the
general population. Less attention, however, has been paid to the grief of parents following …

Background: There has been a breadth of research on the grief experience of parents
following the death of a child. However, the role and impact of hospital-based bereaved …

Background Losing a child tragically impacts the well-being and functioning of parents. With
these effects extending beyond emotional, physical morbidity and compromising self …

Highlights•Parent experiences surrounding end-of-life care in the NICU were explored.•The
opportunity to be a parent was important regardless of the infant's prognosis.•NICU nurses …

This study aimed to validate the Swedish version of the Prolonged Grief Disorder-13 tool
(PG–13) by examining its psychometric properties, including factor structure, discriminant …

Context Children with life-shortening serious illnesses and medically-complex care needs
are often cared for by their families at home. Little, however, is known about what aspects of …