Initiatives that collect and share genomic data to advance health research are widespread
and accelerating. Commercial interests in these efforts, while vital, may erode public trust …

Background While genomic data sharing can facilitate important health research and
discovery benefits, these must be balanced against potential privacy risks and harms to …

Data repositories, like research biobanks, seek to optimise the number of responding
participants while simultaneously attempting to increase the amount of data donated per …

Drawing on 40 in-depth interviews with Chinese breast cancer patients who participated in
the breast cancer biobank at a hospital in Beijing, China, this paper explores these patients' …

Abstract Background The Biobanque québécoise de la COVID-19 (Quebec Biobank for
COVID-19, or BQC19) is a provincial initiative that aims to manage the longitudinal …

Biobanks have established a critical role in biomedical research by collecting, preserving,
organizing, and disseminating biospecimens and related health data, contributing to …

Introduction The development of the scientific potential linked with biobanking and research
on human biological material is highly dependent on the willingness of potential donors to …

Combinations of health-related research data and clinical data generated, eg, from
wearables, can increasingly provide new insights about a person's health. Combining these …

Although the awareness of biobanks is considered to be a key factor in the willingness to
participate in biobanking, the empirical evidence on their relationship is inconsistent. The …

Availability of relevant biological samples supports both basic science research and patient-
centered clinical studies. Establishing a biorepository faces challenges at multiple levels …