[HTML][HTML] Genetic counseling and testing for Asian Americans: a systematic review
Abstract Purpose Asian Americans have been understudied in the literature on genetic and
genomic services. The current study systematically identified, evaluated, and summarized …
genomic services. The current study systematically identified, evaluated, and summarized …
Latinx attitudes, barriers, and experiences with genetic counseling and testing: A systematic review
As genetics is increasingly used across clinical settings, there is a need to understand the
impact and experiences of diverse patients. This review systematically examined research …
impact and experiences of diverse patients. This review systematically examined research …
[HTML][HTML] Exploring Autistic adults' perspectives on genetic testing for autism
L Byres, E Morris, J Austin - Genetics in Medicine, 2023 - Elsevier
Purpose This study aimed to investigate the perspectives of Autistic adults regarding genetic
testing for autism. Although previous studies have explored the perceptions of genetic …
testing for autism. Although previous studies have explored the perceptions of genetic …
'Is it better not to know certain things?': views of women who have undergone non-invasive prenatal testing on its possible future applications
H Bowman-Smart, J Savulescu, C Mand… - Journal of medical …, 2019 - jme.bmj.com
Non-invasive prenatal testing (NIPT) is at the forefront of prenatal screening. Current uses
for NIPT include fetal sex determination and screening for chromosomal disorders such as …
for NIPT include fetal sex determination and screening for chromosomal disorders such as …
Contributing to an autism biobank: diverse perspectives from autistic participants, family members and researchers
There has been intense debate within the autistic and autism communities about the use of
autism biobanks–repositories containing biological and phenotypic materials–and of …
autism biobanks–repositories containing biological and phenotypic materials–and of …
Knowledge and attitudes toward genetic testing for autism spectrum disorders among parents of affected children in Taiwan
The prevalence of autism spectrum disorders (ASD) in Taiwan has been increasing, and
genetic testing for ASD has been available and provided to parents of children diagnosed …
genetic testing for ASD has been available and provided to parents of children diagnosed …
The need to consider context: A systematic review of factors involved in the consent process for genetic tests from the perspective of patients
F Coulombe, AM Laberge - AJOB Empirical Bioethics, 2024 - Taylor & Francis
Background: Informed consent for genetic tests is a well-established practice. It should be
based on good quality information and in keeping with the patient's values. Existing …
based on good quality information and in keeping with the patient's values. Existing …
Needs assessment in genetic testing education: A survey of parents of children with autism spectrum disorder in the united states
Understanding parents' educational needs concerning genetic testing for their children with
autism spectrum disorder (ASD) is important in developing tailored, evidence‐based health …
autism spectrum disorder (ASD) is important in developing tailored, evidence‐based health …
Parental Perspectives on Early Life Screening and Genetic Testing for ASD: A Systematic Review
Abstract Autism Spectrum Disorder (ASD) is a prevalent neurodevelopmental condition for
which no prenatal or early life screening tests exist. Early life recognition of ASD is key to …
which no prenatal or early life screening tests exist. Early life recognition of ASD is key to …
Genetic testing experiences among parents of children with autism spectrum disorder in the United States
This study examined the experiences of Autism Spectrum Disorder (ASD) genetic testing
among parents of children with ASD. A nationwide sample of 552 parents of children with …
among parents of children with ASD. A nationwide sample of 552 parents of children with …