Applying a digital health checklist and readability tools to improve informed consent for digital health research

C Nebeker, M Gholami, D Kareem, E Kim - Frontiers in Digital Health, 2021 - frontiersin.org
Background: As research involving human participants increasingly occurs with the aid of
digital tools (eg, mobile apps, wearable and remote pervasive sensors), the consent content …

Communication and information sharing with pediatric patients including refugees with advanced cancer, their caregivers, and health care professionals in Jordan: a …

G Alarjeh, S Boufkhed, W Alrjoub, P Guo… - Frontiers in …, 2023 - frontiersin.org
Introduction Effective communication in pediatric palliative cancer care is an important
aspect of practice to enhance patient-and family-centered care, and to optimize decision …

What information and the extent of information to be provided in an informed assent/consent form of pediatric drug trials

N Koonrungsesomboon, P Charoenkwan… - BMC Medical …, 2022 - Springer
Background This study aimed to determine the elements and the extent of information that
child participants and their parents would like to read in an informed assent form …

Paediatric oncology providers' perspectives on early integration of paediatric palliative care

R Saad, LB Kurdahi, N Yazbick-Dumit… - … Journal of Palliative …, 2020 - magonlinelibrary.com
Background: Healthcare providers' perceptions of palliative care in children with cancer
influence care management, specifically that of its early integration. Thus, it is crucial to …

Reconsidering assent for randomised control trials in education: Ethical and procedural concerns

A McPherson, S Saltmarsh… - British Educational …, 2020 - Wiley Online Library
Despite ongoing disagreement about what kinds of evidence are most valuable to
education, there continues to be an increasing push to make a narrow group of scientific …

Developing a Family Resource: Considerations for Family Member Research Participation

M Polfuss, K Mooney-Doyle, M Keller… - Journal of Family …, 2023 - journals.sagepub.com
When individuals participate in health care research, the choice often affects the entire
family. Researchers are responsible for protecting participants and minimizing any burdens …

[图书][B] Connecting during COVID: Meeting Social and Emotional Needs of Vulnerable Elementary Students during a Pandemic

J Tyler - 2022 - search.proquest.com
The COVID-19 pandemic necessitated school buildings to close in March of 2020 across the
United States. From that time forward, many students remained in virtual learning …

Subject recruitment, consent, and assent

AN White, JL Herrod, HM Long, MT Brodhead - Research Ethics in …, 2023 - Elsevier
The purpose of this chapter is to discuss the ethical recruitment of human subject research
participants and the ethical process for obtaining consent and assent from prospective …

Consideraciones claves en el proceso de asentimiento en niños, niñas y adolescentes: revisión integrativa

P Vega Vega, C Miranda Castillo, I Vargas Celis - Andes pediatrica, 2024 - SciELO Chile
La incorporación de niñas, niños y adolescentes en investigación requiere de medidas
bioéticas para salvaguardar su autonomía y bienestar, a través de la aplicación del proceso …

Resilience in Adolescents: The Role of Parental and Adolescent Emotion Regulation

A Mehta, G Gupta - Mind and Society, 2024 - mindandsociety.in
Resilience is the quality that helps individuals cope in the face of adversity by maintaining
emotional wellbeing. During the growing years, parents play a valuable role in instilling the …