Genetic discrimination: international perspectives
M Otlowski, S Taylor, Y Bombard - Annual review of genomics …, 2012 - annualreviews.org
Genetic discrimination (GD) is a complex, multifaceted ethical, psychosocial, and legal
phenomenon. It is defined as the differential treatment of asymptomatic individuals or their …
phenomenon. It is defined as the differential treatment of asymptomatic individuals or their …
Genetic discrimination and life insurance: a systematic review of the evidence
Background Since the late 1980s, genetic discrimination has remained one of the major
concerns associated with genetic research and clinical genetics. Europe has adopted a …
concerns associated with genetic research and clinical genetics. Europe has adopted a …
Attitudes and practices among internists concerning genetic testing
R Klitzman, W Chung, K Marder… - Journal of genetic …, 2013 - Springer
Many questions remain concerning whether, when, and how physicians order genetic tests,
and what factors are involved in their decisions. We surveyed 220 internists from two …
and what factors are involved in their decisions. We surveyed 220 internists from two …
A proposal for an inclusive working definition of genetic discrimination to promote a more coherent debate
Genetic discrimination is an evolving phenomenon that impacts fundamental human rights
such as dignity, justice and equity. Although, in the past, various definitions to better …
such as dignity, justice and equity. Although, in the past, various definitions to better …
Views of discrimination among individuals confronting genetic disease
R Klitzman - Journal of Genetic Counseling, 2010 - Springer
Though the US passed the Genetic Information Non-Discrimination Act, many questions
remain of how individuals confronting genetic disease view and experience possible …
remain of how individuals confronting genetic disease view and experience possible …
[图书][B] Am I my genes?: Confronting fate and family secrets in the age of genetic testing
R Klitzman - 2012 - books.google.com
Genetic testing is rapidly spreading; every year dozens of new tests are developed which
analyze our genetically inherited predisposition toward certain diseases. Companies have …
analyze our genetically inherited predisposition toward certain diseases. Companies have …
Study protocol: the Australian genetics and life insurance moratorium—monitoring the effectiveness and response (A-GLIMMER) project
Background The use of genetic test results in risk-rated insurance is a significant concern
internationally, with many countries banning or restricting the use of genetic test results in …
internationally, with many countries banning or restricting the use of genetic test results in …
Unravelling fears of genetic discrimination: an exploratory study of Dutch HCM families in an era of genetic non-discrimination acts
E Geelen, K Horstman, CLM Marcelis… - European Journal of …, 2012 - nature.com
Since the 1990s, many countries in Europe and the United States have enacted genetic non-
discrimination legislation to prevent people from deferring genetic tests for fear that insurers …
discrimination legislation to prevent people from deferring genetic tests for fear that insurers …
Verification of consumers' experiences and perceptions of genetic discrimination and its impact on utilization of genetic testing
K Barlow-Stewart, SD Taylor, SA Treloar… - Genetics in …, 2009 - nature.com
Purpose: To undertake a systematic process of verification of consumer accounts of alleged
genetic discrimination. Methods: Verification of incidents reported in life insurance and other …
genetic discrimination. Methods: Verification of incidents reported in life insurance and other …
Genetics, insurance and professional practice: survey of the Australasian clinical genetics workforce
In Australia and New Zealand, by contrast with much of the developed world, insurance
companies can use genetic test results to refuse cover or increase premiums for mutually …
companies can use genetic test results to refuse cover or increase premiums for mutually …