Genetic discrimination: international perspectives

M Otlowski, S Taylor, Y Bombard - Annual review of genomics …, 2012 - annualreviews.org
Genetic discrimination (GD) is a complex, multifaceted ethical, psychosocial, and legal
phenomenon. It is defined as the differential treatment of asymptomatic individuals or their …

Genetic discrimination and life insurance: a systematic review of the evidence

Y Joly, I Ngueng Feze, J Simard - BMC medicine, 2013 - Springer
Background Since the late 1980s, genetic discrimination has remained one of the major
concerns associated with genetic research and clinical genetics. Europe has adopted a …

Attitudes and practices among internists concerning genetic testing

R Klitzman, W Chung, K Marder… - Journal of genetic …, 2013 - Springer
Many questions remain concerning whether, when, and how physicians order genetic tests,
and what factors are involved in their decisions. We surveyed 220 internists from two …

A proposal for an inclusive working definition of genetic discrimination to promote a more coherent debate

B Kaiser, D Uberoi, MC Raven-Adams, K Cheung… - Nature Genetics, 2024 - nature.com
Genetic discrimination is an evolving phenomenon that impacts fundamental human rights
such as dignity, justice and equity. Although, in the past, various definitions to better …

Views of discrimination among individuals confronting genetic disease

R Klitzman - Journal of Genetic Counseling, 2010 - Springer
Though the US passed the Genetic Information Non-Discrimination Act, many questions
remain of how individuals confronting genetic disease view and experience possible …

[图书][B] Am I my genes?: Confronting fate and family secrets in the age of genetic testing

R Klitzman - 2012 - books.google.com
Genetic testing is rapidly spreading; every year dozens of new tests are developed which
analyze our genetically inherited predisposition toward certain diseases. Companies have …

Study protocol: the Australian genetics and life insurance moratorium—monitoring the effectiveness and response (A-GLIMMER) project

J Tiller, A McInerney-Leo, A Belcher, T Boughtwood… - BMC Medical …, 2021 - Springer
Background The use of genetic test results in risk-rated insurance is a significant concern
internationally, with many countries banning or restricting the use of genetic test results in …

Unravelling fears of genetic discrimination: an exploratory study of Dutch HCM families in an era of genetic non-discrimination acts

E Geelen, K Horstman, CLM Marcelis… - European Journal of …, 2012 - nature.com
Since the 1990s, many countries in Europe and the United States have enacted genetic non-
discrimination legislation to prevent people from deferring genetic tests for fear that insurers …

Verification of consumers' experiences and perceptions of genetic discrimination and its impact on utilization of genetic testing

K Barlow-Stewart, SD Taylor, SA Treloar… - Genetics in …, 2009 - nature.com
Purpose: To undertake a systematic process of verification of consumer accounts of alleged
genetic discrimination. Methods: Verification of incidents reported in life insurance and other …

Genetics, insurance and professional practice: survey of the Australasian clinical genetics workforce

J Tiller, L Keogh, S Wake, M Delatycki… - Frontiers in Public …, 2018 - frontiersin.org
In Australia and New Zealand, by contrast with much of the developed world, insurance
companies can use genetic test results to refuse cover or increase premiums for mutually …