Implementation of common rule changes to the informed consent form: a research staff and institutional review board collaboration
G Gartel, H Scuderi, C Servay - Ochsner Journal, 2020 - ochsnerjournal.org
Background: The Common Rule, which governs federally funded clinical research involving
human subjects, formally defines the requirements for institutional review board (IRB) …
human subjects, formally defines the requirements for institutional review board (IRB) …
Integrating stakeholder feedback in translational genomics research: an ethnographic analysis of a study protocol's evolution
SA Kraft, C McMullen, NM Lindberg, D Bui… - Genetics in …, 2020 - nature.com
Purpose This study describes challenges faced while incorporating sometimes conflicting
stakeholder feedback into study design and development of patient-facing materials for a …
stakeholder feedback into study design and development of patient-facing materials for a …
The new oncologic diagnosis discussion: Perspectives of pediatric oncologists
KA Six, A Wadhwa, JM York, K Adams… - JCO Oncology …, 2023 - ascopubs.org
PURPOSE: We aimed to understand how new diagnosis discussions are conducted in
pediatric oncology, and the training provided for their conduct. METHODS: This mixed …
pediatric oncology, and the training provided for their conduct. METHODS: This mixed …
Investigating and supporting patient and caregiver Sensemaking in complex medical decisions using participatory design
S Fadem - MDM policy & practice, 2023 - journals.sagepub.com
Background. Patients and caregivers facing complex health decisions must make sense of
unfamiliar, emotionally challenging information and experiences. For patients with …
unfamiliar, emotionally challenging information and experiences. For patients with …
Engaging Asian American Family Caregivers in Clinical Trials: Awareness, Preferences, and Concerns
E Rubovits, A Yedavalli, S Sadruddin… - Journal of Applied …, 2024 - journals.sagepub.com
The purpose of this study was to evaluate Asian American caregivers' experiences and
concerns related to clinical trials and the types of information they trust, use, and prefer …
concerns related to clinical trials and the types of information they trust, use, and prefer …
Strategies to overcome constraints for Small Business Sustainability
JQM Jones Sr - 2021 - search.proquest.com
More than 20% of small businesses that started in March 2018 failed within a year. Small
business owners would benefit from strategies to identify and mitigate constraints from …
business owners would benefit from strategies to identify and mitigate constraints from …
Design for sensemaking in complex and ambiguous medical situations
S Fadem - 2021 - search.proquest.com
The tools designed to support patients facing complex and ambiguous medical situations
often take an episodic and information-centric view emphasizing decision making. Such an …
often take an episodic and information-centric view emphasizing decision making. Such an …
Telecommuting Strategies in the Human Capital Management Industry
RP McCalmon - 2023 - search.proquest.com
Telecommuting became more entrenched in many corporations during the COVID-19
pandemic. The rise in the number of telecommuting employees has presented new …
pandemic. The rise in the number of telecommuting employees has presented new …
The efficacy of information interventions for patients undergoing hematopoietic stem cell transplantation: A systematic review of randomized trials
A Kiropoulou, M Katsareli… - Health & Research …, 2023 - ejournals.epublishing.ekt.gr
Background: The provision of information to patients is one of the most important factors of
supportive cancer care. We conducted a systematic review to detect information-giving …
supportive cancer care. We conducted a systematic review to detect information-giving …
Collaborative Treatment Planning
P Glare, WJ Appleyard - Person Centered Medicine, 2023 - Springer
Collaborative treatment planning refers to the practice of preference-based medicine and
describes how the clinician—or interdisciplinary team of clinicians—works with the patient …
describes how the clinician—or interdisciplinary team of clinicians—works with the patient …