Self‐determination of people with profound intellectual and multiple disabilities

SN Skarsaune - Developmental Medicine & Child Neurology, 2023 - Wiley Online Library
Self‐determination is a human right that people with profound intellectual and multiple
disabilities (PIMD) risk not being granted. Exploration of such topics and research in general …

Self-determination: What can we learn from persons with profound intellectual and multiple disabilities?

SKN Skarsaune, HM Hanisch, A Gjermestad - 2021 - vid.brage.unit.no
Self-determination is often equated with independence and individual choices, which limits
its relevance for persons with profound intellectual and multiple disabilities (PIMD) due to …

Holding and professional care: On self-determination for persons with profound intellectual and multiple disabilities

SN Skarsaune, HM Hanisch - Research and Practice for …, 2023 - journals.sagepub.com
Persons with profound intellectual and multiple disabilities (PMID) are in danger of not being
granted the human right to experience self-determination. Attitudes questioning the …

Educating for supported decision making and shared decision making: a scoping review of educational design and outcomes for education and training interventions

H Pillen, S Attrill, A Fisher, S Forte… - Disability and …, 2024 - Taylor & Francis
Purpose To characterise existing knowledge about the design and learning outcomes of
education and training programs for supported or shared decision making. Materials and …

Participation and service access rights for people with intellectual disability: A role for law?

T Carney - Journal of Intellectual and Developmental Disability, 2013 - Taylor & Francis
Background Supported decision-making and personal budgets for services are the new
paradigms. Method Supported decision-making proposals from the Australian State of …

Stretching beyond our perceived boundaries: The role of speech-language pathology in realising autonomy through supported decision-making

J Watson - International Journal of Speech-Language Pathology, 2023 - Taylor & Francis
Abstract Purpose Based on a 2022 Speech Pathology Australia National Conference
keynote address, the author explores the concept of autonomy and how it can be …

An accessible survey method: Increasing the participation of people with a disability in large sample social research

E Wilson, R Campain, M Moore, N Hagiliassis… - 2013 - figshare.swinburne.edu.au
The 1 in 4 Poll project seeks to increase understanding of the views and needs of people
with a disability by developing an accessible survey method. It is being conducted by Deakin …

Perceptions of staff and family of the quality of life of people with severe to profound intellectual disability

KCJM de Geus-Neelen… - Journal of Intellectual …, 2019 - Taylor & Francis
Background: Staff and relatives often act as advocates for people with severe to profound
intellectual disability (ID). Since staff and relatives make proxy judgements about quality of …

What about us? A case for legal recognition of interdependence in informal care relationships

B Clough - Journal of Social Welfare and Family Law, 2014 - Taylor & Francis
As the number of people being cared for by relatives and friends rises, it is vitally important
to examine whether legal frameworks surrounding care and treatment sufficiently account for …

Parent-perceived autonomy-supportive experiences and basic psychological needs of people with complex support needs: Development and preliminary …

JM van Tuyll van Serooskerken… - Journal of …, 2024 - journals.sagepub.com
Background: Understanding and supporting basic psychological needs of persons with
complex support needs is important but difficult because of communicative challenges. We …