Children's palliative care in low-and middle-income countries

J Downing, RA Powell, J Marston, C Huwa… - Archives of disease in …, 2016 - adc.bmj.com
One-third of the global population is aged under 20 years. For children with life-limiting
conditions, palliative care services are required. However, despite 80% of global need …

[HTML][HTML] Pediatric palliative care for children with progressive non-malignant diseases

H Siden - Children, 2018 - mdpi.com
A substantial number of children cared for by pediatric palliative care physicians have
progressive non-malignant conditions. Some elements of their care overlap with care for …

[HTML][HTML] Supporting parent caregivers of children with life-limiting illness

KD Koch, BL Jones - Children, 2018 - mdpi.com
The well-being of parents is essential to the well-being of children with life-limiting illness.
Parents are vulnerable to a range of negative financial, physical, and psychosocial issues …

A summary of pediatric palliative care team structure and services as reported by centers caring for children with cancer

MS Weaver, AR Rosenberg, J Tager… - Journal of palliative …, 2018 - liebertpub.com
Background: Little is known about the composition, availability, integration, communication,
perceived barriers, and work load of pediatric palliative care (PPC) providers serving …

[HTML][HTML] Pediatric palliative care: insights into assessment tools and review instruments

S Papa, A Mercante, L Giacomelli, F Benini - Children, 2023 - mdpi.com
The proper assessment of needs and outcomes in pediatric palliative care (PPC) is
imperative to ensure the best possible service to patients and families. However, given the …

[HTML][HTML] Pediatric palliative care in oncology: basic principles

F Benini, I Avagnina, L Giacomelli, S Papa, A Mercante… - Cancers, 2022 - mdpi.com
Simple Summary About 4 million children with an oncological disease worldwide require
palliative care due to the nature of their condition. The WHO defines pediatric palliative care …

[HTML][HTML] Understanding pediatric palliative care within interdisciplinary palliative programs: a qualitative study

P Rico-Mena, J Güeita-Rodríguez, R Martino-Alba… - BMC Palliative Care, 2023 - Springer
Purpose To describe the process of delivery of pediatric palliative care from the perspective
of a pediatric interdisciplinary team and the children's parents. Methods A qualitative …

Outcome measurement in paediatric palliative care: lessons from the past and future developments

J Downing, E Namisango, R Harding - 2018 - nru.uncst.go.ug
The need for paediatric palliative care (PPC) globally is great yet there is limited evidence of
the quality or outcomes of the care provided. The lack of an outcome measure for PPC has …

How and when to refer a child for specialist paediatric palliative care

E Harrop, C Edwards - Archives of Disease in Childhood-Education and …, 2013 - ep.bmj.com
Specialist paediatric palliative care is a relatively new area of paediatrics, and the interface
with other disciplines can occasionally pose challenges for referrers due to lack of …

Aligning guidelines and medical practice: literature review on pediatric palliative care guidelines

E De Clercq, M Rost, N Pacurari, BS Elger… - Palliative & supportive …, 2017 - cambridge.org
Objective: Palliative care for children is becoming an important subspecialty of healthcare.
Although concurrent administration of curative and palliative care is recommended, timely …