Navigating the pathway to care in adults with cerebral palsy

EA Hurvitz, DG Whitney, B Waldron-Perrine… - Frontiers in …, 2021 - frontiersin.org
As individuals with cerebral palsy (CP) age, they face unique challenges which complicate
their ability to access and receive appropriate health care. These problems exist at the level …

Prevalence of high-burden medical conditions and health care resource utilization and costs among adults with cerebral palsy

DG Whitney, NS Kamdar, S Ng, EA Hurvitz… - Clinical …, 2019 - Taylor & Francis
Purpose: Individuals with cerebral palsy (CP) are susceptible to early development of high-
burden medical conditions, which may place a considerable strain on health care resources …

[HTML][HTML] Criterion validity of assessment methods to estimate body composition in children with cerebral palsy: A systematic review

DAC Snik, NM de Roos - Annals of physical and rehabilitation medicine, 2021 - Elsevier
Background Poor nutritional status is a problem in a high number of children with cerebral
palsy (CP) and impairs their well-being. Therefore, periodic assessment of nutritional status …

Incidence rate of advanced chronic kidney disease among privately insured adults with neurodevelopmental disabilities

DG Whitney, M Schmidt, S Bell… - Clinical …, 2020 - Taylor & Francis
Purpose Due to complex medical profiles, adults with neurodevelopmental disabilities
(NDDs) may have a heightened risk for early development of chronic kidney disease (CKD) …

Anxiety, depression, and support needs of the mothers of children with cerebral palsy and determining their opinions: Mixed methods study

A Sarman, S Tuncay, Y Budak, E Demirpolat… - Journal of Pediatric …, 2024 - Elsevier
Purpose This study aimed to determine the level of anxiety, depression, support needs and
opinions of mothers of children with cerebral palsy. Design and Methods The study used a …

Elevated prevalence of osteoarthritis among adults with cerebral palsy.

ZP French, RV Torres… - Journal of Rehabilitation …, 2019 - search.ebscohost.com
Objective: Adults with cerebral palsy have an increased risk of developing osteoarthritis.
However, little is known about the epidemiology of osteoarthritis among this vulnerable …

Elevated fracture risk for adults with neurodevelopmental disabilities

DG Whitney, MS Caird, KJ Jepsen, NS Kamdar… - Bone, 2020 - Elsevier
Background Fracture is a high-burden condition that accelerates unhealthful aging and
represents a considerable economic burden. Adults with neurodevelopmental disabilities …

[HTML][HTML] 5-year risk of “adult-onset” chronic diseases during childhood and adolescent transitioning for individuals with cerebral palsy

DG Whitney - Preventive Medicine Reports, 2022 - Elsevier
Epidemiologic evidence documenting risk of chronic diseases as children with cerebral
palsy age throughout growth is lacking to inform prevention strategies. The objective was to …

Polypharmacy is a risk factor for mortality, severe chronic kidney disease, and liver disease among privately insured adults with cerebral palsy

DG Whitney, M Schmidt, H Haapala - Journal of Managed Care & …, 2021 - jmcp.org
BACKGROUND: Adults with cerebral palsy (CP) have an increased risk for polypharmacy,
premature mortality, and early development of several morbidities, including conditions …

Polypharmacy among privately insured adults with cerebral palsy: a retrospective cohort study

DG Whitney, M Schmidt, MD Peterson… - Journal of Managed Care …, 2020 - jmcp.org
BACKGROUND: Adults with cerebral palsy (CP) have increased risk for developing various
secondary chronic diseases, especially when they have other neurodevelopmental …