Human biospecimens have played a crucial role in scientific and medical advances.
Although the ethical and policy issues associated with biospecimen research have long …

Background Despite the increased prevalence of bioethics research that seeks to use
empirical data to answer normative research questions, there is no consensus as to what an …

Over the last decade, patient and public involvement (PPI) has become a requisite in
applied health research. Some funding bodies demand explicit evidence of PPI, while others …

It seems like every day society faces a new ethical challenge raised by a scientific
innovation. Human genetic engineering, stem cell research, face transplantation, synthetic …

Reflexivity as a concept and practice is widely recognized and acknowledged in qualitative
social science research. In this article, through an account of the 'reflexive moments' I …

Empirical Legal Research describes how to investigate the roles of legislation, regulation,
legal policies and other legal arrangements at play in society. It is invaluable as a guide to …

Given that biases can distort bioethics work, it has received surprisingly little and fragmented
attention compared to in other fields of research. This article provides an overview of …

OBJECTIVE: Although shared decision making (SDM) has become increasingly important in
bioethical discussions and clinical practice, it is not clear in which treatment situations SDM …

We argue that once a normative claim is developed, there is an imperative to effect changes
based on this norm. As such, ethicists should adopt an “implementation mindset” when …

Background Informed consent is a legal and ethical doctrine derived from the principle of
respect for autonomy. Generally two rights derived from autonomy are accorded legal …