Promoting self‐determination of persons with severe or profound intellectual disabilities: A systematic review and meta‐analysis

PB Kuld, N Frielink, M Zijlmans… - Journal of …, 2023 - Wiley Online Library
People with severe or profound intellectual disabilities (IDs) are believed to experience low
levels of self‐determination, which negatively affects their quality of life. This systematic …

Sterilization of those with intellectual disability: Evolution from non-consensual interventions to strict safeguards

S Rowlands, JJ Amy - Journal of Intellectual Disabilities, 2019 - journals.sagepub.com
Non-consensual sterilization is one of the characteristic historical abuses that took place
mainly in the first half of the 20th century. People with intellectual disability (ID) were a prime …

Future directions in supported decision-making

A Arstein-Kerslake, J Watson, M Browning… - Disability studies …, 2017 - ojs.library.osu.edu
Supported decision-making is at the forefront of modern disability research. This is due to
Article 12 of the Convention on the Rights of Persons with Disabilities (CRPD), which …

Supporting end of life decision making: Case studies of relational closeness in supported decision making for people with severe or profound intellectual disability

J Watson, E Wilson, N Hagiliassis - Journal of Applied …, 2017 - Wiley Online Library
Background The United Nations Convention on the Rights of Persons with Disabilities
(UNCRPD) promotes the use of supported decision making in lieu of substitute decision …

Placing the preferences of people with profound intellectual and multiple disabilities at the center of end-of-life decision making through storytelling

J Watson, H Voss, MJ Bloomer - Research and Practice for …, 2019 - journals.sagepub.com
With a focus on the use of narrative approaches, this article is a commentary on decision-
making support for people with profound intellectual and multiple disability (PIMD) at the end …

Sebastianin tahtoa tulkitsemassa: Syvästi kehitysvammaisen sosiaalihuollon asiakkaan mahdollisuudet vaikuttaa omaan arkeensa

S Miettinen - Janus Sosiaalipolitiikan ja sosiaalityön tutkimuksen …, 2021 - journal.fi
Vaikka kehitysvammaisten ihmisten itsemääräämisoikeus tunnustetaan nykyisin laajasti,
emme ole vielä saavuttaneet yhteisymmärrystä siitä, mitä kyseinen oikeus tarkoittaa silloin …

A process of decision-making support: Exploring supported decision-making practice in Canada

M Browning, C Bigby, J Douglas - Journal of intellectual & …, 2021 - Taylor & Francis
Background: Canada was the first country to develop legal mechanisms that allow for
supported decision making, and little research has explored how decision making is …

What is important for advance care planning in the palliative phase of people with intellectual disabilities? A multi‐perspective interview study

H Voss, A Vogel, AMA Wagemans… - Journal of Applied …, 2020 - Wiley Online Library
Background Advance care planning (ACP) is the process of discussing and documenting
wishes and preferences for future care. Research about ACP for people with intellectual …

Experiences and perceptions of everyday decision-making in the lives of adults with intellectual disabilities, their care partners and direct care support workers

H Casey, A Trayer, D Desmond… - Journal of Intellectual …, 2023 - journals.sagepub.com
Background: Decisional support is important to people with intellectual disabilities. This
review explores: i) how everyday decision-making is perceived and/or experienced by …

Investigating supported decision‐making for persons with mild to moderate intellectual disability using Institutional ethnography

N Devi, B Prodinger, A Pennycott… - Journal of Policy and …, 2020 - Wiley Online Library
Making one's own choices is an important part of leading a fulfilling life within society.
However, people with IDs often face significant obstacles when making their own decisions …