Focus groups with people with learning disabilities

A Kaehne, C O'Connell - Journal of intellectual disabilities, 2010 - journals.sagepub.com
Focus groups are a widely accepted method in qualitative research. While there is a
burgeoning literature on the methodology of focus groups, using focus groups with people …

Disability, nursing research and the importance of reflexivity

R Northway - Journal of advanced nursing, 2000 - Wiley Online Library
Disability, nursing research and the importance of reflexivity Reflexivity has been viewed as
a way of promoting quality within the research process. Its importance is highlighted in both …

'I'm sure we made it a better study…': Experiences of adults with intellectual disabilities and parent carers of patient and public involvement in a health research study

C Beighton, C Victor, IM Carey… - Journal of …, 2019 - journals.sagepub.com
Patient and public involvement is considered integral to health research in the United
Kingdom; however, studies documenting the involvement of adults with intellectual …

Researching together

V Williams - British Journal of Learning Disabilities, 1999 - Wiley Online Library
To be empowering, the research must be designed with a group of people who have
decided to obtain power, and then must be conducted so that the group learns how to do the …

Navigating risks and professional roles: Research with lesbian, gay, bisexual, trans, and queer young people with intellectual disabilities

Z Marshall, S Nixon, D Nepveux, T Vo… - Journal of Empirical …, 2012 - journals.sagepub.com
We examine ethical issues that emerged during a community-based participatory research
(CBPR) study in Toronto, Canada, exploring sexual health attitudes and practices among …

Views and experiences of people with intellectual disabilities and their families.(1) The user perspective

P Ramcharan, G Grant - Journal of Applied Research in …, 2001 - Wiley Online Library
The present paper presents a descriptive summary of the views and experiences of people
with intellectual disabilities (IDs) as they have been represented in research and other …

Person-centred outcomes: are outcomes improved where a person-centred care model is used?

FF Parley - Journal of Learning Disabilities, 2001 - journals.sagepub.com
This present study sought data that could evidence improvements in care services for
people with learning disabilities. The investigation tested whether desired outcomes of …

Emancipatory and participatory research: how far have we come?

P Ramcharan, G Grant, M Flynn - The international handbook …, 2004 - Wiley Online Library
Research involving people with intellectual disabilities is evolving at a rapid pace. Barely 20
years ago, it was an exception for social research to use people with intellectual disabilities …

'I'ma researcher!'Working together to gain ethical approval for a participatory research study

M Ham, N Jones, I Mansell… - Journal of learning …, 2004 - journals.sagepub.com
'I'ma researcher!'These were the words used by one member of our research team when we
left a meeting of our Local Research Ethics Committee having been granted approval for our …

'So often they do not get recruited': exploring service user and staff perspectives on participation in learning disability research and the barriers that inhibit it

B Crook, R Tomlins, A Bancroft… - British Journal of Learning …, 2016 - Wiley Online Library
Accessible summary The government and NHS say it is important for people with learning
disabilities to be able to take part in research if they want to. We asked five people with …