Patients' and professionals' views related to ethical issues in precision medicine: a mixed research synthesis

A Erdmann, C Rehmann-Sutter, C Bozzaro - BMC medical ethics, 2021 - Springer
Background Precision medicine development is driven by the possibilities of next generation
sequencing, information technology and artificial intelligence and thus, raises a number of …

A market in the making: the past, present and future of direct-to-consumer genomics

S Hogarth, P Saukko - New Genetics and Society, 2017 - Taylor & Francis
It is just over two decades since a small start-up firm called University Diagnostics launched
a mail-order genetic testing service in the UK in 1996. That same year, the US-based …

A tidal wave of inevitable data? Assetization in the consumer genomics testing industry

S Geiger, N Gross - Business & Society, 2021 - journals.sagepub.com
We bring together recent discussions on data capitalism and biocapitalization by studying
value flows in consumer genomics firms—an industry at the intersection between health …

Direct‐to‐consumer genetic tests providing health risk information: a systematic review of consequences for consumers and health services

JJ Nolan, E Ormondroyd - Clinical Genetics, 2023 - Wiley Online Library
Direct‐to‐consumer genetic tests (DTC‐GT) offer a variety of genetic health risk information.
Understanding evidence of impacts is required for effective policy to protect consumers and …

Recoding the gift relationship: views on introducing genomic testing to blood donation

R Thorpe, V Raivola, B Masser - New Genetics and Society, 2024 - Taylor & Francis
This study examines how the institutional context informs the ways in which healthy
recipients relate to genomic information. Through focus group data, it considers the trend of …

Bioconstitutional imaginaries and the comparative politics of genetic self-knowledge

JB Hurlbut, I Metzler, L Marelli… - Science, Technology, & …, 2020 - journals.sagepub.com
Genetic testing has become a vehicle through which basic constitutional relationships
between citizens and the state are revisited, reaffirmed, or rearticulated. The interplay …

[图书][B] Becoming Donor-Conceived: The Transformation of Anonymity in Gamete Donation

A Baumann - 2021 - library.oapen.org
While it has been argued that anonymity in gamete donation has been brought to an end by
legal changes and technological developments, Amelie Baumann suggests that this is in …

Genomics: Implications for Education. A Futures Report.

J Hooper, M Azarbadegan, E Cogley, M Mackie… - UK Department for …, 2024 - ERIC
In January 2024, building on the Genomics Beyond Health report, the Department for
Education (DfE), with co-funding from the Government Office for Science (GO-Science) …

Attitudes and experiences of European clinical geneticists towards direct-to-consumer genetic testing: a qualitative interview study

L Kalokairinou, P Borry, HC Howard - New Genetics and Society, 2019 - Taylor & Francis
Direct-to-consumer (DTC) genetic tests (GT) enable consumers to access a wide range of
GT, without involving a healthcare professional, promoting an increasing disassociation of …

Personalised medicine

M Morrison, S Kelly - … International Handbook of Critical Issues in …, 2021 - taylorfrancis.com
Personalised medicine involves new ways of classifying and stratifying people, in terms of
both existing conditions and behaviours, and especially predicted risk of future illness …