Patients' and professionals' views related to ethical issues in precision medicine: a mixed research synthesis
Background Precision medicine development is driven by the possibilities of next generation
sequencing, information technology and artificial intelligence and thus, raises a number of …
sequencing, information technology and artificial intelligence and thus, raises a number of …
A market in the making: the past, present and future of direct-to-consumer genomics
It is just over two decades since a small start-up firm called University Diagnostics launched
a mail-order genetic testing service in the UK in 1996. That same year, the US-based …
a mail-order genetic testing service in the UK in 1996. That same year, the US-based …
A tidal wave of inevitable data? Assetization in the consumer genomics testing industry
We bring together recent discussions on data capitalism and biocapitalization by studying
value flows in consumer genomics firms—an industry at the intersection between health …
value flows in consumer genomics firms—an industry at the intersection between health …
Direct‐to‐consumer genetic tests providing health risk information: a systematic review of consequences for consumers and health services
JJ Nolan, E Ormondroyd - Clinical Genetics, 2023 - Wiley Online Library
Direct‐to‐consumer genetic tests (DTC‐GT) offer a variety of genetic health risk information.
Understanding evidence of impacts is required for effective policy to protect consumers and …
Understanding evidence of impacts is required for effective policy to protect consumers and …
Recoding the gift relationship: views on introducing genomic testing to blood donation
This study examines how the institutional context informs the ways in which healthy
recipients relate to genomic information. Through focus group data, it considers the trend of …
recipients relate to genomic information. Through focus group data, it considers the trend of …
Bioconstitutional imaginaries and the comparative politics of genetic self-knowledge
Genetic testing has become a vehicle through which basic constitutional relationships
between citizens and the state are revisited, reaffirmed, or rearticulated. The interplay …
between citizens and the state are revisited, reaffirmed, or rearticulated. The interplay …
[图书][B] Becoming Donor-Conceived: The Transformation of Anonymity in Gamete Donation
A Baumann - 2021 - library.oapen.org
While it has been argued that anonymity in gamete donation has been brought to an end by
legal changes and technological developments, Amelie Baumann suggests that this is in …
legal changes and technological developments, Amelie Baumann suggests that this is in …
Genomics: Implications for Education. A Futures Report.
J Hooper, M Azarbadegan, E Cogley, M Mackie… - UK Department for …, 2024 - ERIC
In January 2024, building on the Genomics Beyond Health report, the Department for
Education (DfE), with co-funding from the Government Office for Science (GO-Science) …
Education (DfE), with co-funding from the Government Office for Science (GO-Science) …
Attitudes and experiences of European clinical geneticists towards direct-to-consumer genetic testing: a qualitative interview study
Direct-to-consumer (DTC) genetic tests (GT) enable consumers to access a wide range of
GT, without involving a healthcare professional, promoting an increasing disassociation of …
GT, without involving a healthcare professional, promoting an increasing disassociation of …
Personalised medicine
M Morrison, S Kelly - … International Handbook of Critical Issues in …, 2021 - taylorfrancis.com
Personalised medicine involves new ways of classifying and stratifying people, in terms of
both existing conditions and behaviours, and especially predicted risk of future illness …
both existing conditions and behaviours, and especially predicted risk of future illness …