Neurologic involvement in scleroderma: a systematic review

TN Amaral, FA Peres, AT Lapa… - Seminars in Arthritis and …, 2013 - Elsevier
abstract Objectives To perform a systematic review of neurologic involvement in Systemic
sclerosis (SSc) and Localized Scleroderma (LS), describing clinical features, neuroimaging …

Health‐related quality of life in systemic sclerosis: a systematic review

M Hudson, BD Thombs, R Steele… - Arthritis Care & …, 2009 - Wiley Online Library
Objective A number of studies (all n< 200) have assessed health‐related quality of life
(HRQOL) in patients with systemic sclerosis (SSc), but no systematic review of the effect of …

Quality of life in systemic sclerosis

C Almeida, I Almeida, C Vasconcelos - Autoimmunity reviews, 2015 - Elsevier
Systemic sclerosis (SSc) is a chronic multi-system autoimmune disease associated with
disability and reduced quality of life. There is no effective treatment or cure to SSc, so it is …

Impact of digital ulcers on disability and health-related quality of life in systemic sclerosis

L Mouthon, C Mestre-Stanislas, A Bérezné… - Annals of the …, 2010 - ard.bmj.com
Objective: To assess the impact of digital ulcers (DUs) on disability and health-related
quality of life (HRQoL) in systemic sclerosis (SSc). Methods: Two hundred and thirteen …

Patients, doctors and risk attitudes

N Makins - Journal of medical ethics, 2023 - jme.bmj.com
A lively topic of debate in decision theory over recent years concerns our understanding of
the different risk attitudes exhibited by decision makers. There is ample evidence that risk …

Disability, fatigue, pain and their associates in early diffuse cutaneous systemic sclerosis: the European Scleroderma Observational Study

S Peytrignet, CP Denton, M Lunt, R Hesselstrand… - …, 2018 - academic.oup.com
Objectives Our aim was to describe the burden of early dcSSc in terms of disability, fatigue
and pain in the European Scleroderma Observational Study cohort, and to explore …

Suffering in a productive world: Chronic illness, visibility, and the space beyond agency

MC Hay - American Ethnologist, 2010 - Wiley Online Library
Is coping with illness really a matter of agency? Drawing on ethnographic research among
people with rheumatological and neurological chronic diseases in the United States, I argue …

Long-term therapy for chronic gout results in clinically important improvements in the health-related quality of life: short form-36 is responsive to change in chronic gout

PP Khanna, F Perez-Ruiz, P Maranian… - Rheumatology, 2011 - academic.oup.com
Abstract Objective. Short Form-36 (SF-36) is a validated outcome measure to assess health-
related quality of life (HRQOL) in patients with gout. We assessed responsiveness to change …

Association of gastrointestinal involvement and depressive symptoms in patients with systemic sclerosis

V Bodukam, RD Hays, P Maranian, DE Furst… - …, 2011 - academic.oup.com
Objectives. SSc-associated gastrointestinal tract involvement (SSc-GIT) is an important
predictor of depressive symptoms. University of California at Los Angeles Scleroderma …

Acute and chronic impact of cardiovascular events on health state utilities

LS Matza, KD Stewart, SR Gandra, PR Delio… - BMC health services …, 2015 - Springer
Background Cost-utility models are frequently used to compare treatments intended to
prevent or delay the onset of cardiovascular events. Most published utilities represent post …