[HTML][HTML] Towards clinical application of implantable brain–computer interfaces for people with late-stage ALS: medical and ethical considerations

MJ Vansteensel, E Klein, G van Thiel, M Gaytant… - Journal of …, 2023 - Springer
Individuals with amyotrophic lateral sclerosis (ALS) frequently develop speech and
communication problems in the course of their disease. Currently available augmentative …

Palliative care principles in ALS

C Shoesmith - Handbook of clinical neurology, 2023 - Elsevier
Amyotrophic lateral sclerosis (ALS) is a progressive neurodegenerative disease associated
with progressive dysphagia, dysarthria, extremity weakness, and dyspnea. Although there …

Clinical guidance in neuropalliative care: an AAN position statement

LP Taylor, JM Besbris, WD Graf, MA Rubin… - Neurology, 2022 - AAN Enterprises
In 1974, Dr. Balfour Mount introduced the term “palliative” from the Latin word palliare—“to
wrap in comfort”—as a description of an approach that supports patients by focusing on …

[HTML][HTML] The current state and future directions of swallowing care in amyotrophic lateral sclerosis

TH Kao, BJ Perry - Current Physical Medicine and Rehabilitation Reports, 2023 - Springer
Abstract Purpose of Review Difficulty swallowing (dysphagia) is of great concern to patients
with ALS as its complications can increase mortality and reduce the quality of life. This …

The wish to die and hastening death in amyotrophic lateral sclerosis: a scoping review

A Erdmann, C Spoden, I Hirschberg… - BMJ Supportive & …, 2021 - spcare.bmj.com
Background Amyotrophic lateral sclerosis (ALS) develops into a life-threatening condition 2
to 4 years after the onset of symptoms. Although many people with the disease decide in …

[HTML][HTML] Exploring clinical management of cognitive and behavioural deficits in MND. A scoping review.

R Francis, S Attrill, R Radakovic, S Doeltgen - Patient education and …, 2023 - Elsevier
Objectives: Little is known about how cognitive and behavioural decline in MND is managed
clinically. This review aimed to summarise clinical management approaches of cognitive …

The role of specialty palliative care for amyotrophic lateral sclerosis

A Sethi, E Everett, A Mehta, J Besbris… - American Journal of …, 2022 - journals.sagepub.com
Amyotrophic Lateral Sclerosis (ALS) is a progressive and incurable neurodegenerative
disease resulting in the loss of motor neurons, eventually leading to death. ALS results in …

Palliative care consults in an inpatient setting for patients with amyotrophic lateral sclerosis

AK Mehta, NJ Jackson… - American Journal of …, 2021 - journals.sagepub.com
Background: Limited data about the frequency and outcomes of palliative care (PC)
specialty consultations for patients with amyotrophic lateral sclerosis (ALS) are available …

Talking about the end of life: communication patterns in amyotrophic lateral sclerosis–a scoping review

A Erdmann, C Spoden, I Hirschberg… - Palliative care and …, 2022 - journals.sagepub.com
Amyotrophic lateral sclerosis (ALS) leads to death on average 2–4 years after the onset of
symptoms. Although many people with the disease decide in favour of life-sustaining …

Palliative care in amyotrophic lateral sclerosis

S Mercadante - Journal of Pain and Symptom Management, 2023 - Elsevier
Amyotrophic lateral sclerosis (ALS) is an incurable neurodegenerative disease of the motor
neurons. Given the evolutive characteristics of this disease, palliative care principles should …