Standardised data on initiatives—STARDIT: Beta version
Background and objective There is currently no standardised way to share information
across disciplines about initiatives, including fields such as health, environment, basic …
across disciplines about initiatives, including fields such as health, environment, basic …
Involving elderly research participants in the co-design of a future multi-generational cohort study
Background It has been proposed that the existing ASPirin in Reducing Events in the Elderly
Extension observational cohort study (ASPREE-XT) would provide a platform for a future …
Extension observational cohort study (ASPREE-XT) would provide a platform for a future …
Applying citizen science to engage families affected by ovarian cancer in developing genetic service outreach strategies
CM McBride, GP Campbell, J Zhao, RD Pentz… - Plos one, 2022 - journals.plos.org
Citizen science (CS) approaches involving non-professional researchers (citizens) as
research collaborators has been used infrequently in health promotion generally and …
research collaborators has been used infrequently in health promotion generally and …
Involving people affected by a rare condition in shaping future genomic research
Background There is evidence that involving potential participants and the public in co-
designing research can improve the quality of the study design, recruitment and …
designing research can improve the quality of the study design, recruitment and …
Co-designing genomics research with a large group of donor-conceived siblings
Background Human genomics research is growing rapidly. More effective methods are
required for co-design and involving people, especially those sub-populations which are …
required for co-design and involving people, especially those sub-populations which are …