Although the progressive clinical trajectory of motor neurone disease (MND) is widely
understood, multiple challenges remain preventing optimal end-of-life care for this …

This study employs a qualitative methodology to explore the effects of the pandemic on the
lives of ALS patients and their caregivers. It aims to understand whether and how online self …

Background: Long-term neurological conditions include multiple sclerosis, Parkinson's-
related diseases, and motor neurone disease. National and international guidelines …

A range of professional figures are needed to preserve the quality of life of people with
amyotrophic lateral sclerosis. This study aimed to explore the beginning of the care process …

Palliative care (PC) clinicians are well poised to help people with disabilities (PWD) live well
in the context of serious illness. PC prioritizes person-centered care with a focus on function …

SAMMANFATTNING I takt med att världens befolkning blir äldre förväntas även antalet
personer med kognitiv sjukdom att öka, likaså antalet anhöriga till dessa personer. Detta gör …