Ethics review of big data research: What should stay and what should be reformed?
Background Ethics review is the process of assessing the ethics of research involving
humans. The Ethics Review Committee (ERC) is the key oversight mechanism designated to …
humans. The Ethics Review Committee (ERC) is the key oversight mechanism designated to …
Participatory research in health promotion: a critical review and illustration of rationales
J Harting, K Kruithof, L Ruijter… - Health Promotion …, 2022 - academic.oup.com
In health promotion research, enthusiasm for patient and public involvement (PPI) is
growing. However, a lack of conceptual clarity leads to ambiguities in participatory …
growing. However, a lack of conceptual clarity leads to ambiguities in participatory …
The impact of public involvement in health research: what are we measuring? Why are we measuring it? Should we stop measuring it?
J Russell, N Fudge, T Greenhalgh - Research involvement and …, 2020 - Springer
As public involvement in the design, conduct and dissemination of health research has
become an expected norm and firmly enshrined in policy, interest in measuring its impact …
become an expected norm and firmly enshrined in policy, interest in measuring its impact …
[HTML][HTML] How to achieve trustworthy artificial intelligence for health
Artificial intelligence holds great promise in terms of beneficial, accurate and effective
preventive and curative interventions. At the same time, there is also awareness of potential …
preventive and curative interventions. At the same time, there is also awareness of potential …
Learning as an outcome of involvement in research: what are the implications for practice, reporting and evaluation?
K Staley, D Barron - Research involvement and engagement, 2019 - Springer
Public involvement in research has evolved over the last two decades in a culture
dominated by the principles of evidence-based medicine. It is therefore unsurprising that …
dominated by the principles of evidence-based medicine. It is therefore unsurprising that …
Artificial intelligence and medical research databases: ethical review by data access committees
F McKay, BJ Williams, G Prestwich, D Bansal… - BMC Medical …, 2023 - Springer
Background It has been argued that ethics review committees—eg, Research Ethics
Committees, Institutional Review Boards, etc.—have weaknesses in reviewing big data and …
Committees, Institutional Review Boards, etc.—have weaknesses in reviewing big data and …
Understanding and using patient experiences as evidence in healthcare priority setting
Background In many countries, committees make priority-setting decisions in order to control
healthcare costs. These decisions take into account relevant criteria, including clinical …
healthcare costs. These decisions take into account relevant criteria, including clinical …
Who should I involve in my research and why? Patients, carers or the public?
Patient and public involvement in research helps to make it more relevant and useful to the
end-users. Involvement influences the design, delivery and dissemination of research …
end-users. Involvement influences the design, delivery and dissemination of research …
Improving student diet and food security in higher education using participatory and co-creation approaches: a systematic review
T Assilian, H Dehove, H Charreire, J Baudry… - International Journal of …, 2024 - Springer
Background Higher education students are an important target group for public health
nutrition interventions. When designing tailored and contextually relevant interventions …
nutrition interventions. When designing tailored and contextually relevant interventions …
Tygerberg research Ubuntu-Inspired community engagement model: integrating community engagement into genomic biobanking
K Moodley, C Beyer - Biopreservation and Biobanking, 2019 - liebertpub.com
Introduction: Community engagement (CE) is an ethical imperative in research, but the
knowledge base for what constitutes effective and ethically sound CE is limited. Ubuntu, as a …
knowledge base for what constitutes effective and ethically sound CE is limited. Ubuntu, as a …