Ethics review of big data research: What should stay and what should be reformed?

A Ferretti, M Ienca, M Sheehan, A Blasimme… - BMC medical …, 2021 - Springer
Background Ethics review is the process of assessing the ethics of research involving
humans. The Ethics Review Committee (ERC) is the key oversight mechanism designated to …

Participatory research in health promotion: a critical review and illustration of rationales

J Harting, K Kruithof, L Ruijter… - Health Promotion …, 2022 - academic.oup.com
In health promotion research, enthusiasm for patient and public involvement (PPI) is
growing. However, a lack of conceptual clarity leads to ambiguities in participatory …

The impact of public involvement in health research: what are we measuring? Why are we measuring it? Should we stop measuring it?

J Russell, N Fudge, T Greenhalgh - Research involvement and …, 2020 - Springer
As public involvement in the design, conduct and dissemination of health research has
become an expected norm and firmly enshrined in policy, interest in measuring its impact …

[HTML][HTML] How to achieve trustworthy artificial intelligence for health

K Bærøe, A Miyata-Sturm, E Henden - Bulletin of the World Health …, 2020 - ncbi.nlm.nih.gov
Artificial intelligence holds great promise in terms of beneficial, accurate and effective
preventive and curative interventions. At the same time, there is also awareness of potential …

Learning as an outcome of involvement in research: what are the implications for practice, reporting and evaluation?

K Staley, D Barron - Research involvement and engagement, 2019 - Springer
Public involvement in research has evolved over the last two decades in a culture
dominated by the principles of evidence-based medicine. It is therefore unsurprising that …

Artificial intelligence and medical research databases: ethical review by data access committees

F McKay, BJ Williams, G Prestwich, D Bansal… - BMC Medical …, 2023 - Springer
Background It has been argued that ethics review committees—eg, Research Ethics
Committees, Institutional Review Boards, etc.—have weaknesses in reviewing big data and …

Understanding and using patient experiences as evidence in healthcare priority setting

L Rand, M Dunn, I Slade, S Upadhyaya… - Cost Effectiveness and …, 2019 - Springer
Background In many countries, committees make priority-setting decisions in order to control
healthcare costs. These decisions take into account relevant criteria, including clinical …

Who should I involve in my research and why? Patients, carers or the public?

K Staley, J Elliott, D Stewart, R Wilson - Research Involvement and …, 2021 - Springer
Patient and public involvement in research helps to make it more relevant and useful to the
end-users. Involvement influences the design, delivery and dissemination of research …

Improving student diet and food security in higher education using participatory and co-creation approaches: a systematic review

T Assilian, H Dehove, H Charreire, J Baudry… - International Journal of …, 2024 - Springer
Background Higher education students are an important target group for public health
nutrition interventions. When designing tailored and contextually relevant interventions …

Tygerberg research Ubuntu-Inspired community engagement model: integrating community engagement into genomic biobanking

K Moodley, C Beyer - Biopreservation and Biobanking, 2019 - liebertpub.com
Introduction: Community engagement (CE) is an ethical imperative in research, but the
knowledge base for what constitutes effective and ethically sound CE is limited. Ubuntu, as a …