Including 'seldom heard'views in research: opportunities, challenges and recommendations from focus groups with British South Asian people with type 2 diabetes

S Prinjha, N Miah, E Ali, A Farmer - BMC Medical Research Methodology, 2020 - Springer
Background The inclusion of 'seldom heard'groups in health and social care research is
increasingly seen as important on scientific, policy and ethical grounds. British South Asians …

Prioritizing barriers and solutions to improve employment for persons with developmental disabilities

A Khayatzadeh-Mahani, K Wittevrongel… - Disability and …, 2020 - Taylor & Francis
Purpose: Persons with a developmental disability have the lowest rate of labour force
participation relative to other disabilities. The widening gap between the labour force …

Factors influencing the research participation of adults with autism spectrum disorders

K Haas, D Costley, M Falkmer, A Richdale… - Journal of autism and …, 2016 - Springer
Recruiting adults with autism spectrum disorders (ASD) into research poses particular
difficulties; longitudinal studies face additional challenges. This paper reports on a mixed …

A systematic review of pharmacists' interventions to support medicines optimisation in patients with visual impairment

BY Kentab, HE Barry, SA Al-Aqeel… - International Journal of …, 2019 - Springer
Background People with visual impairment often report poorer health and encounter many
challenges when using medicines. Pharmacists can play a significant role in optimising …

Protocol for the IDEAL-2 longitudinal study: following the experiences of people with dementia and their primary carers to understand what contributes to living well …

B Silarova, SM Nelis, RM Ashworth, C Ballard… - BMC public health, 2018 - Springer
Background There is a major need for longitudinal research examining the experiences of
people with dementia and their primary carers, as relatively little is known about how the …

Challenges encountered with a mindfulness app: Lessons learnt from a pilot randomized trial involving caregivers and individuals with autism

M Hartley, D Dorstyn, C Due - Research in Autism Spectrum Disorders, 2022 - Elsevier
Background We undertook a trial to examine the feasibility of a self-guided mindfulness app,
Smiling Mind, for children and adults with Autism Spectrum Disorder (ASD) and their …

Developing an easy read version of the adult social care outcomes toolkit (ASCOT)

A Turnpenny, J Caiels, B Whelton… - Journal of Applied …, 2018 - Wiley Online Library
Background This study reports the experiences of developing and pretesting an Easy Read
version of the Adult Social Care Outcomes Toolkit (ASCOT) for selfreport by people with …

[HTML][HTML] Patient-reported outcome measures and the evaluation of services

E Gibbons, N Black, L Fallowfield… - … , solutions and future …, 2016 - ncbi.nlm.nih.gov
A growing consensus has emerged about patient-reported outcome measures (PROMs) as
an important tool in the evaluation of services. There is little dispute regarding the range of …

Exploring the social carerelated quality of life outcomes of adults with intellectual disabilities through the use of Talking Mats®

C Darvell, J Bradshaw - Journal of Applied Research in …, 2023 - Wiley Online Library
Background Views on social care related quality of life (SCRQol) are typically gathered
directly from individuals or from proxy informants. Easyread options are available, although …

Assisting individuals ageing with learning disability: support worker perspectives

S Wark, R Hussain, H Edwards - Tizard Learning Disability Review, 2015 - emerald.com
Purpose–While ageing with an intellectual (learning) disability has been subject to
increased research in recent years, there remains little knowledge regarding the daily …