Objective: To rate the psychometric properties of instruments to measure internalized (or self-
) stigma in health conditions where stigma plays a major role. Method: We conducted a …

In the care of patients with Lynch Syndrome (LS), a range of psychosocial issues are
encountered, which significantly affect patient outcomes. A brief historical background of …

Abstract A CDKN2A/p16 mutation confers 28%–67% lifetime melanoma risk, a risk that may
be moderated by ultraviolet radiation exposure. The aim of this study was to test whether …

Hereditary cancer risk counseling is the process of identifying families at risk for hereditary
cancer syndromes with the ultimate goal of minimizing cancer-related morbidity and …

Abstract Objective To describe Chinese Lynch syndrome‐associated colorectal cancer
patients' self‐concept and adherence to surveillance and explore the factors influencing …

Esplen MJ, Stuckless N, Gallinger S, Aronson M, Rothenmund H, Semotiuk K, Stokes J, Way
C, Green J, Butler K, Petersen HV, Wong J. Development and validation of an instrument to …

Hereditary cancer risk counseling is the process of informing families about their cancer
risks and options for genetic testing and management, with the ultimate goal of minimizing …

Possibilities to undergo predictive genetic testing for cancer have expanded, which implies
that an increasing number of healthy individuals will learn about cancer predisposition …

An increasing number of individuals seek genetic counseling and hereby learn about
hereditary cancer in the family. Lynch syndrome is associated with an inherited high risk for …

Objective Most individuals who learn about hereditary cancer manage well, but identification
of subgroups who find this knowledge burdening would allow psychosocial intervention. The …