EFNS‐ENS Guidelines on the diagnosis and management of disorders associated with dementia

S Sorbi, J Hort, T Erkinjuntti, T Fladby… - European Journal of …, 2012 - Wiley Online Library
Background and objectives The last version of the EFNS dementia guidelines is from 2007.
In 2010, the revised guidelines for Alzheimer's disease (AD) were published. The current …

[HTML][HTML] Processes of consent in research for adults with impaired mental capacity nearing the end of life: systematic review and transparent expert consultation …

CJ Evans, E Yorganci, P Lewis, J Koffman, K Stone… - BMC medicine, 2020 - Springer
Background Involving adults lacking capacity (ALC) in research on end of life care (EoLC) or
serious illness is important, but often omitted. We aimed to develop evidence-based …

Determining medical decision-making capacity in brain tumor patients: why and how?

A Pace, JAF Koekkoek, MJ Van Den Bent… - Neuro-oncology …, 2020 - academic.oup.com
Background Brain tumor patients are at high risk of impaired medical decision-making
capacity (MDC), which can be ethically challenging because it limits their ability to give …

Operationalising ethical challenges in dementia research—a systematic review of current evidence

E West, A Stuckelberger, S Pautex, J Staaks… - Age and …, 2017 - academic.oup.com
Background: the worldwide number of dementia cases is increasing, and this is a trend that
is expected to continue as a growing proportion of the population ages. However …

[HTML][HTML] Could the decision of trial participation precede the informed consent process? Evidence from Burkina Faso

L Paré Toe, RM Ravinetto, S Dierickx, C Gryseels… - PloS one, 2013 - journals.plos.org
Background Over the last years, the number of clinical trials carried out in low-income
countries with poor medical infrastructure and limited access to health care has increased. In …

[HTML][HTML] Protecting vulnerable research subjects in critical care trials: enhancing the informed consent process and recommendations for safeguards

H Silverman - Annals of Intensive Care, 2011 - Springer
Although critically ill patients represent a vulnerable group of individuals, guidelines in
research ethics assert that ethically acceptable research may proceed with such vulnerable …

Dementia-friendly intervention for hospitalized older adults with cognitive impairments: results of the Italian Dementia-Friendly Hospital Trial (IDENTITA)

N Allegri, A Rosi, F Del Signore, R Cremascoli… - Aging & Mental …, 2022 - Taylor & Francis
Objective: To evaluate whether a short training focused on improving dementia care
practices of the hospital staff was able to counteract functional loss and to decrease negative …

[HTML][HTML] The full spectrum of ethical issues in dementia research: Findings of a systematic qualitative review

TG Götzelmann, D Strech, H Kahrass - BMC Medical Ethics, 2021 - Springer
Background When including participants with dementia in research, various ethical issues
arise. At present, there are only a few existing dementia-specific research guidelines …

Handling of informed consent and patient inclusion in research with geriatric trauma patients–a matter of protection or disrespect?

JS Jensen, S Reiter-Theil, DA Celio… - … interventions in aging, 2019 - Taylor & Francis
Background Despite the aging of numerous societies and future health care challenges,
clinical research in the elderly is underrepresented. The aim of this review was to analyze …

[HTML][HTML] Ethical challenges and solutions regarding delirium studies in palliative care

L Sweet, D Adamis, DJ Meagher, D Davis… - Journal of pain and …, 2014 - Elsevier
Context Delirium occurs commonly in settings of palliative care (PC), in which patient
vulnerability in the unique context of end-of-life care and delirium-associated impairment of …