Digital, co-created implementation of communication partner training programs for stroke, brain injury, and dementia: Past, present, and future
E Power, R Morrow - International journal of speech-language …, 2024 - Taylor & Francis
Purpose Communication partner training is a recommended intervention for partners of
people with acquired brain injury. In this paper we explore the past, present, and future of …
people with acquired brain injury. In this paper we explore the past, present, and future of …
Development of an “aphasia-accessible participant in research experience survey” through co-production
C Shiggins, D Coe, L Gilbert… - Aphasiology, 2022 - Taylor & Francis
Introduction Feedback is essential for the development and enhancement of processes.
Everyone who participates in research should have the opportunity to provide feedback on …
Everyone who participates in research should have the opportunity to provide feedback on …
Distinctions and blurred boundaries between qualitative approaches and public and patient involvement (PPI) in research
R Mc Menamin, J Isaksen, M Manning… - International Journal of …, 2022 - Taylor & Francis
Purpose: International health and social care policy increasingly draws on stakeholder
experiences and opinions. The distinctions between various approaches to researching …
experiences and opinions. The distinctions between various approaches to researching …
Research ethics in a changing social sciences landscape
N Brown - Research Ethics, 2023 - journals.sagepub.com
The role of research ethics committees, and research ethics issues more broadly are often
not viewed in the context of the development of scientific methods and the academic …
not viewed in the context of the development of scientific methods and the academic …
The development of the People with Aphasia and Other Layperson Involvement (PAOLI) framework for guiding patient and public involvement (PPI) in aphasia …
M Charalambous, A Kountouri, JR Schwyter… - Research Involvement …, 2023 - Springer
Abstract Background Patient and Public Involvement (PPI) in aphasia research requires
researchers to include people with aphasia as research partners from the beginning of the …
researchers to include people with aphasia as research partners from the beginning of the …
Unpacking the 'black box of horrendousness': a qualitative exploration of the barriers and facilitators to conducting trials involving adults lacking capacity to consent
V Shepherd, K Hood, F Wood - Trials, 2022 - Springer
Background Trials involving adults who lack capacity to consent encounter a range of ethical
and methodological challenges, resulting in these populations frequently being excluded …
and methodological challenges, resulting in these populations frequently being excluded …
Creating a novel approach to discourse treatment through coproduction with people with aphasia and speech and language therapists
Background Although spoken discourse is an outcome prioritised by all stakeholders in
aphasia rehabilitation, assessment and treatment of discourse are not routine clinical …
aphasia rehabilitation, assessment and treatment of discourse are not routine clinical …
Working together: Experiences of people with aphasia as co-researchers in participatory health research studies
R McMenamin, M Griffin, B Grzybowska, C Pound - Aphasiology, 2021 - Taylor & Francis
Background: People with aphasia have been engaging with research in a variety of ways.
There are few descriptions of how they are involved in participatory research methodologies …
There are few descriptions of how they are involved in participatory research methodologies …
Optimizing our evidence map for cognitive–communication interventions: how it can guide us to better outcomes for adults living with acquired brain injury
S MacDonald, E Shumway - International Journal of Language …, 2024 - Wiley Online Library
Background Speech and language therapists (SLTs) share a collective goal of ensuring that
adults with cognitive–communication disorders (CCD) due to acquired brain injuries (ABI) …
adults with cognitive–communication disorders (CCD) due to acquired brain injuries (ABI) …
In it for the long haul: a reflective account of collaborative involvement in aphasia research and education
S Horton, D Barnston, J Barnston, C Bell, J Bell… - Aphasiology, 2021 - Taylor & Francis
Background: The involvement of service users and supporters/advocates in healthcare
education and healthcare research has developed an increasingly high profile in recent …
education and healthcare research has developed an increasingly high profile in recent …