Digital, co-created implementation of communication partner training programs for stroke, brain injury, and dementia: Past, present, and future

E Power, R Morrow - International journal of speech-language …, 2024 - Taylor & Francis
Purpose Communication partner training is a recommended intervention for partners of
people with acquired brain injury. In this paper we explore the past, present, and future of …

Development of an “aphasia-accessible participant in research experience survey” through co-production

C Shiggins, D Coe, L Gilbert… - Aphasiology, 2022 - Taylor & Francis
Introduction Feedback is essential for the development and enhancement of processes.
Everyone who participates in research should have the opportunity to provide feedback on …

Distinctions and blurred boundaries between qualitative approaches and public and patient involvement (PPI) in research

R Mc Menamin, J Isaksen, M Manning… - International Journal of …, 2022 - Taylor & Francis
Purpose: International health and social care policy increasingly draws on stakeholder
experiences and opinions. The distinctions between various approaches to researching …

Research ethics in a changing social sciences landscape

N Brown - Research Ethics, 2023 - journals.sagepub.com
The role of research ethics committees, and research ethics issues more broadly are often
not viewed in the context of the development of scientific methods and the academic …

The development of the People with Aphasia and Other Layperson Involvement (PAOLI) framework for guiding patient and public involvement (PPI) in aphasia …

M Charalambous, A Kountouri, JR Schwyter… - Research Involvement …, 2023 - Springer
Abstract Background Patient and Public Involvement (PPI) in aphasia research requires
researchers to include people with aphasia as research partners from the beginning of the …

Unpacking the 'black box of horrendousness': a qualitative exploration of the barriers and facilitators to conducting trials involving adults lacking capacity to consent

V Shepherd, K Hood, F Wood - Trials, 2022 - Springer
Background Trials involving adults who lack capacity to consent encounter a range of ethical
and methodological challenges, resulting in these populations frequently being excluded …

Creating a novel approach to discourse treatment through coproduction with people with aphasia and speech and language therapists

M Cruice, S Aujla, J Bannister, N Botting, M Boyle… - Aphasiology, 2022 - Taylor & Francis
Background Although spoken discourse is an outcome prioritised by all stakeholders in
aphasia rehabilitation, assessment and treatment of discourse are not routine clinical …

Working together: Experiences of people with aphasia as co-researchers in participatory health research studies

R McMenamin, M Griffin, B Grzybowska, C Pound - Aphasiology, 2021 - Taylor & Francis
Background: People with aphasia have been engaging with research in a variety of ways.
There are few descriptions of how they are involved in participatory research methodologies …

Optimizing our evidence map for cognitive–communication interventions: how it can guide us to better outcomes for adults living with acquired brain injury

S MacDonald, E Shumway - International Journal of Language …, 2024 - Wiley Online Library
Background Speech and language therapists (SLTs) share a collective goal of ensuring that
adults with cognitive–communication disorders (CCD) due to acquired brain injuries (ABI) …

In it for the long haul: a reflective account of collaborative involvement in aphasia research and education

S Horton, D Barnston, J Barnston, C Bell, J Bell… - Aphasiology, 2021 - Taylor & Francis
Background: The involvement of service users and supporters/advocates in healthcare
education and healthcare research has developed an increasingly high profile in recent …