Background The role of patient involvement in health research has evolved over the past
decade. Despite efforts to engage patients as partners, the role is not well understood. We …

Background Patient and public involvement (PPI) in health research is on the rise
worldwide. Within cancer research, PPI ensures that the rapid development of medical and …

Background Recent studies mention a need to investigate partnership roles and dynamics
within patient and public involvement and engagement (PPIE) in health research, and how …

Background The expectation to include patients as partners in research has steadily gained
momentum. The vulnerability of frail and/or seriously ill patients provides additional …

Plain English summary The importance of citizen involvement in healthcare research and
planning has been widely recognized. There is however, a lack of understanding of how …

The literature on ethics in social science research and evaluation practice indicates how
mixed and multimethods increase complexity for ethical and moral decision-making …

Background Including the lived experience of patients in research is important to improve
the quality and outcomes of cancer studies. It is challenging to include adolescents and …

Background Partnering with patients in healthcare research now benefits from a strong
rationale and is encouraged by funding agencies and research institutions. However, this …

Objective Cancer is a disease that mostly affects older adults. Older adults have been under-
represented in clinical cancer research. Around the world there is a push for patient …

Background The interest in patient involvement is increasing in health research, however, is
not yet well described in adolescents and young adults (AYA) with palliative cancer, such as …