The Caregiver Burden Inventory as a sleep disturbance screening tool for parents of children with autism spectrum disorder

A Ortiz-Rubio, I Torres-Sánchez… - Journal of Pediatric …, 2021 - Elsevier
Purpose The study was conducted to explore the degree to which caregiver burden is
associated with sleep quality in parents of children with autism spectrum disorder, and to …

Experiences of parents of children with mucopolysaccharidosis in Türkiye: a qualitative study

T Arpaci - Journal of Pediatric Nursing, 2024 - Elsevier
Purpose Mucopolysaccharidosis increases morbidity and mortality by causing physical and
mental limitations in children. Parents experience various difficulties, mostly due to delayed …

Adaptation and validation of the Caregiver Burden Inventory in eating disorders

S Bertelli, P Ferrara, S Di Modica, E Bergamelli… - Journal of Eating …, 2022 - Springer
Background Living with people diagnosed with a mental disorder is known to increase the
risk of developing high levels of so–called “caregiver burden” in informal caregivers. In …

Exploring the experiences of family caregivers with low income accessing health care services for children with inborn errors of metabolism

K Chimney - 2022 - mspace.lib.umanitoba.ca
Inborn errors of metabolism (IEMs) have been shown to impact the wellbeing of family
caregivers, with more challenges experienced by families with lower income. The main …

QUALITY OF LIFE, CAREGIVER BURDEN AND ASSOCIATED FACTORS WITH REGARD TO PARENTS OF CHILDREN WITH INHERITED METABOLIC DISORDERS

F Aslan, H Karataş - Gazi Sağlık Bilimleri Dergisi, 2024 - dergipark.org.tr
Background: Parents of children with inherited metabolic diseases have many difficulties
compared to parents of healthy children. Aim: The aim of this study is to determine quality of …

Kronik hastalığı olan çocukların ebeveynlerinin belirsizliğe tahammülsüzlük, uyku kalitesi ve sosyal desteğin bakım yükü üzerine etkisi

F Doğaner - 2024 - acikerisim.selcuk.edu.tr
Özet Bu çalışma kronik hastalığı olan çocukların ebeveynlerinin belirsizliğe tahammülsüzlük,
uyku kalitesi ve sosyal desteğin bakım yükü üzerine etkisini saptamak amacıyla yapıldı …

[PDF][PDF] KALITSAL METABOLİK HASTALIĞI OLAN ÇOCUĞA SAHİP EBEVEYNLERİN YAŞAM KALİTESİ, BAKIM YÜKÜ VE ETKİLEYEN FAKTÖRLERİN BELİRLENMESİ

F Aslan - 2021 - acikerisim.harran.edu.tr
Bu çalışma Kalıtsal Metabolik Hastalığı olan çocuğa sahip ebeveynlerin yaşam kalitesi,
bakım yükü ve etkileyen faktörlerin belirlenmesi amacıyla tanımlayıcı tipte yapılmıştır …