Artificial intelligence and internet of things (AI-IoT) technologies in response to COVID-19 pandemic: A systematic review
The origin of the COVID-19 pandemic has given overture to redirection, as well as
innovation to many digital technologies. Even after the progression of vaccination efforts …
innovation to many digital technologies. Even after the progression of vaccination efforts …
[HTML][HTML] Effects of a multi-faceted education and support programme on anxiety symptoms among people with systemic sclerosis and anxiety during COVID-19 (SPIN …
Background No trials have tested multifaceted mental health interventions recommended by
public health organisations during COVID-19. The objective of this trial was to evaluate the …
public health organisations during COVID-19. The objective of this trial was to evaluate the …
The Scleroderma Patient-Centered Intervention Network Cohort: baseline clinical features and comparison with other large scleroderma cohorts
DH Dougherty, L Kwakkenbos, ME Carrier… - …, 2018 - academic.oup.com
Abstract Objectives The Scleroderma Patient-centered Intervention Network (SPIN) Cohort is
a web-based cohort designed to collect patient-reported outcomes at regular intervals as a …
a web-based cohort designed to collect patient-reported outcomes at regular intervals as a …
[HTML][HTML] Protocol for a partially nested randomised controlled trial to evaluate the effectiveness of the scleroderma patient-centered intervention network COVID-19 …
BD Thombs, L Kwakkenbos, ME Carrier… - Journal of …, 2020 - Elsevier
Objective Contagious disease outbreaks and related restrictions can lead to negative
psychological outcomes, particularly in vulnerable populations at risk due to pre-existing …
psychological outcomes, particularly in vulnerable populations at risk due to pre-existing …
[HTML][HTML] Effects of a support group leader education program jointly developed by health professionals and patients on peer leader self-efficacy among leaders of …
Background More people with rare diseases likely receive disease education and emotional
and practical support from peer-led support groups than any other way. Most rare-disease …
and practical support from peer-led support groups than any other way. Most rare-disease …
Effects of non-pharmacological and non-surgical interventions on health outcomes in systemic sclerosis: protocol for a living systematic review
MN Discepola, A Carboni-Jiménez, L Kwakkenbos… - BMJ open, 2021 - bmjopen.bmj.com
Introduction Systemic sclerosis (SSc; scleroderma) is a rare, chronic, autoimmune disease
with a high level of burden, a significant impact on the ability to carry out daily activities, and …
with a high level of burden, a significant impact on the ability to carry out daily activities, and …
[HTML][HTML] Randomized feasibility trial of the Scleroderma Patient-centered Intervention Network Self-Management (SPIN-SELF) Program
L Kwakkenbos, N Østbø, ME Carrier… - Pilot and Feasibility …, 2022 - Springer
Abstract Background The Scleroderma Patient-centered Intervention Network (SPIN)
developed an online self-management program (SPIN-SELF) designed to improve disease …
developed an online self-management program (SPIN-SELF) designed to improve disease …
[HTML][HTML] The Scleroderma Patient-centered Intervention Network Self-Management (SPIN-SELF) Program: protocol for a two-arm parallel partially nested randomized …
J Nordlund, RS Henry, L Kwakkenbos, ME Carrier… - Trials, 2021 - Springer
Abstract Background Systemic sclerosis (scleroderma; SSc) is a rare autoimmune
connective tissue disease. We completed an initial feasibility trial of an online self …
connective tissue disease. We completed an initial feasibility trial of an online self …
Psychosocial Issues and Care for Patients with Systemic Sclerosis
BD Thombs, L Kwakkenbos - Scleroderma: From Pathogenesis to …, 2024 - Springer
People living with chronic medical conditions face challenges not only with respect to their
physical health but also to their emotional and social well-being. Chronic conditions, such as …
physical health but also to their emotional and social well-being. Chronic conditions, such as …
[PDF][PDF] Kylene Aguila1, Angelica Bourgeault1, Violet Konrad9, Maureen Sauvé10, Kerri Connolly11, Richard S. Henry1, 2, Nora Østbø1, Alexander W. Levis12, Linda …
Background: More people with rare diseases likely receive disease education and
emotional and practical support from peer‑led support groups than any other way. Most rare …
emotional and practical support from peer‑led support groups than any other way. Most rare …