[HTML][HTML] Trust in scholarly communications and infrastructure: Indigenous data sovereignty
K Ruckstuhl - Frontiers in Research Metrics and Analytics, 2022 - frontiersin.org
Many Indigenous people have a deep mistrust of research, with some describing research
as one of the “dirtiest” words in Indigenous language. The histories and experiences behind …
as one of the “dirtiest” words in Indigenous language. The histories and experiences behind …
[HTML][HTML] The commercialization of biospecimens from Indigenous Peoples: A scoping review of benefit-sharing
T Tone-Pah-Hote, N Redvers - Frontiers in Medicine, 2022 - frontiersin.org
Background: There is ongoing and increasing interest in the commercialization of
biospecimen-derived products from Indigenous Peoples. Discourse on benefit-sharing …
biospecimen-derived products from Indigenous Peoples. Discourse on benefit-sharing …
First genome-wide association study in an Australian aboriginal population provides insights into genetic risk factors for body mass index and type 2 diabetes
A body mass index (BMI)> 22kg/m2 is a risk factor for type 2 diabetes (T2D) in Aboriginal
Australians. To identify loci associated with BMI and T2D we undertook a genome-wide …
Australians. To identify loci associated with BMI and T2D we undertook a genome-wide …
All in the blood: A review of Aboriginal Australians' cultural beliefs about blood and implications for biospecimen research
E Kowal, A Greenwood… - Journal of Empirical …, 2015 - journals.sagepub.com
Public participation in medical research and biobanking is considered key to advances in
scientific discovery and translation to improved health care. Cultural concerns relating to …
scientific discovery and translation to improved health care. Cultural concerns relating to …
[HTML][HTML] Breast cancer in Australian indigenous women: incidence, mortality, and risk factors
KA Tapia, G Garvey, M Mc Entee… - Asian Pacific journal …, 2017 - ncbi.nlm.nih.gov
Abstract The Indigenous people of Australia face significant health gaps compared with the
general population, with lower life expectancies, higher rates of death, and chronic illness …
general population, with lower life expectancies, higher rates of death, and chronic illness …
From biocolonialism to emancipation: considerations on ethical and culturally respectful omics research with indigenous Australians
As part of a (bio) colonial project, the biological information of Indigenous Peoples has
historically been under scientific scrutiny, with very limited benefits for communities and …
historically been under scientific scrutiny, with very limited benefits for communities and …
Indigenous knowledge around the ethics of human research from the Oceania region: A scoping literature review
Background Many indigenous people have died or been harmed because of inadequately
monitored research. Strong regulations in Human Research Ethics (HRE) are required to …
monitored research. Strong regulations in Human Research Ethics (HRE) are required to …
[图书][B] The future of precision medicine in Australia
R Williamson, W Anderson, S Duckett, I Frazer… - 2018 - apo.org.au
Developments in genetics, biotechnology and medical science over the past few decades
have provided a host of new tools and procedures with which to identify, interpret and act …
have provided a host of new tools and procedures with which to identify, interpret and act …
A pathway to precision medicine for Aboriginal Australians: a study protocol
(1) Background: Genomic precision medicine (PM) utilises people's genomic data to inform
the delivery of preventive and therapeutic health care. PM has not been well-established for …
the delivery of preventive and therapeutic health care. PM has not been well-established for …
[PDF][PDF] Genetics and Indigenous communities: ethical issues
EE Kowal - International Encyclopedia of the Social & Behavioral …, 2015 - researchgate.net
Indigenous people stand to benefit from advances in genomic technology, but genetic
research in Indigenous communities has been controversial. This article reviews the ethical …
research in Indigenous communities has been controversial. This article reviews the ethical …